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ADT injection: Benefits worth the toll it will take on my body?
Prostate Cancer | Last Active: May 20 1:57pm | Replies (73)Comment receiving replies
You will hear horror stories about ADT here, but there are other stories, including mine. I was on Lupron & ADT (they are distinct & different) for 2.5 years after my PSA rose after surgery. My side effects were very mild: A mild hot flash about once a month (which I found amusing), & not having to shave every day.
When my oncologist offered to take me off of hormone therapy, I initially declined, because I saw no benefit. Then I thought maybe the cancer was in remission, so I took the doctor's offer. At the first suggestion from him that I should go back on hormone therapy, I will resume it.
Remember, success cases often don't come here to report. A lot of very unhappy people do come here, especially recently.
Replies to "You will hear horror stories about ADT here, but there are other stories, including mine. I..."
@readandlearn
My husband had prostrate surgery in 2003 surgery, 2011 radiation for recurrence. 2004 it returned and he is on Lupron, started March 2024. The oncologist gave him 2 weeks of pills prior to the first injection and 2 weeks of pills after the injection. My husband is 86 has the dementia and fractured his back 3 times. I have not mentioned the recurrence to him I just tell him the shots are a preventive measure for cancer.
He appears not to have any side effects, he was hot for a week or so when he started but he has not mentioned any symptoms that concern me. I do think his memory has got worse though. His psa was 1.45 then 1.78 and recently 2.78.
He has an appointment with oncologist next week so we will see what he recommends for the future. The whole point of this message is basically to confirm what you said that not everyone has severe side effects. Have a good day.
@readandlearn
Yeah bro he's right I'm on lupron and all the rest I laugh at the hot flashes minor soreness and remain thankful things aren't much worse fuck it bro live you know it could be much worse
@readandlearn I too was on two stints of Lupron (9 months, and then later one year without any noticeable major side effects. Once while waiting for my quarterly shot there was another patient waiting for his shot, expressing dread, knowing from past experience the dose is going to kick the crap out of him. Until then I didn’t know how lucky I was.
One reason doctors may prescribed Lupron or Eligard is the cost. Most insurance will cover the injections, but oral meds are expensive.
I’m on Orgovyx + Nubequa now with a $2000 Medicare Rx supplement copay cap.
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@readandlearn
Lupron is ADT, There is no distinction at all between Lupron and ADT since it is an ADT drug.
You would not be on two ADT drugs so I suspect you were also on an ARPI drug (Zytiga or a lutamide) not a second ADT drug.
Just wonder what is that other drug you were taking.
When I was on Lupron, I got terrible hot flashes for the first year. 10 or 12 a day at least and each one would accompany a feeling of fatigue. My doctor prescribed a depo-provera Shot which almost completely stopped the hot flashes. Then I went on Zytiga and they came back. That got me using the Embrlabs.com Wave device Which helped control my hot flashes a lot.
I did take Lupron for a total of six years and got used to its side effects.. It does destroy your muscles And gives most people a beer belly. I go to the gym three days a week to offset that. It also weakens your bones, I have taken bone strengtheners for the last eight years.
I’ve been on orgovyx For almost 3 years now. It’s another ADT drug, Works Quite similar to Lupron, Doesn’t give me the hot flashes like Lupron did however.