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Myelodysplastic/Myeloproliferative Neoplasm with Ring Sideroblasts
Blood Cancers & Disorders | Last Active: Jan 13 7:31pm | Replies (5)Comment receiving replies
Hi @robinh06 I’m not sure if hydroxyurea is contributing to your bone pain and body aches. We have several members taking that med so I’m expecting someone will pop into the conversation and share their experience. Most side effects that were posted were fatigue and headaches.
One thing I do know with blood cancers it may take some tweaking to find the sweet spot with dosages or even mediation changes to get a balance between efficacy and side effects. There can also be changes within the blood condition itself. That’s why there are more frequent labs if a doctor notes changes.
Has your doctor discussed long term treatment options for you? Has an allogeneic bone marrow transplant been discussed or other medications?
Replies to "Hi @robinh06 I’m not sure if hydroxyurea is contributing to your bone pain and body aches...."
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@loribmt oh yes the fatigue and headaches are a pain. The headaches have definitely gotten
better than what they were.
Both oncology/hematology have told me it could take a year or more to regulate my blood.
Just patiently waiting. lol Oncologist told me that the headaches probably was not a side affect from the Hydroxy . Had to do a head MRI.. showed all clear. I knew it would. I have read on here alot of headaches and fatigue.
We have not talked long term treatment options. He just says we will deal with the changes as they come.
Very thankful for this page to have see what others say.
Thank you for helping.. 🙂