1. < Brain & Nervous System

Trying to stay upbeat.

Posted by Ryman @ryman, Apr 13, 2017

I saw a neurologist this morning. I have to do more tests but some of the things she said were discouraging. It may be that I won't get over this dizziness and that would make life very limited and depressing. I am trying to think of useful, productive things I may still be able to do. It would have to be at home, alone. Any thoughts? Thanks.

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crystalgal | @crystalgal | Apr 14, 2017

I've had chemotherapy induced neuropathy since the 2nd treatment of Taxol in 2006. It has steadily worsened within the last 2 years including toes to groin and fingers. (ps you don't walk or balance well if you can't feel your feet). I finally got through my emotional angst and brought home a 4 wheel rollator with seat this week. It was expensive and not covered by insurance, but I think well worth it to be able to go places again, stand in grocery and other lines. I have brief periods of vertigo, but with the rollator, I can turn around and sit on the seat until it passes. Good luck .

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1 reply
Ryman | @ryman | Apr 14, 2017
In reply to @jczarkowski1270 "I first had neuropathy, when I retired 2006-2008; first went to University Medical Center; not impressive. ..." + (show)
@jczarkowski1270

I first had neuropathy, when I retired 2006-2008; first went to University Medical Center; not impressive.  I sensed the pathway.  Then I used turmeric along with developing a spiritual support group in the Philippines(on line, and one trip there)....I was ready to visit Mayo...Boom it all passed.  Then recently, over a 1year and half; dizziness symptoms.  As previously, study food medicine(much in research, but little in those who sell the products)...experimented and use ginger.  Dramamine(sells: ginger, a substance similar to meclizine(good only for a few weeks), and a anti histamine(I am not sure on subgroup)....Be sure to sort out the Dramamines.  Otherwise use quersitin (found in apples and onions)... and of course as I initially did(rule out tumor or bled)...plus noting who the radiologist/or have second interpretation by a neurologist(which I did).  Some folks have multiple MRI imaging(in some cases find a small, hidden tumor).  Hopefully, the food medicine and no obvious tumor or bled, and find a trusted and knowledgable advocate and self research. JIM>>>>

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Thank you.

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Ryman | @ryman | Apr 14, 2017
In reply to @crystalgal "I've had chemotherapy induced neuropathy since the 2nd treatment of Taxol in 2006. It has steadily..." + (show)
@crystalgal

I've had chemotherapy induced neuropathy since the 2nd treatment of Taxol in 2006. It has steadily worsened within the last 2 years including toes to groin and fingers. (ps you don't walk or balance well if you can't feel your feet). I finally got through my emotional angst and brought home a 4 wheel rollator with seat this week. It was expensive and not covered by insurance, but I think well worth it to be able to go places again, stand in grocery and other lines. I have brief periods of vertigo, but with the rollator, I can turn around and sit on the seat until it passes. Good luck .

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Thank you. That sounds like it would be helpful.

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Bonnie | @eifeltower | Jun 22, 2017
In reply to @alyric "You can ask for an IV medication for the re-flux to help that; you can also..." + (show)
@alyric

You can ask for an IV medication for the re-flux to help that; you can also ask for an anti-anxiety & pain med to help you for lying comfortably!

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Teresa,you always seem to say the most comforting things in your replies,amazing.eifeltower.

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