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Profile picture for robinh06 @robinh06

@loribmt Thank you for replying. I have informed them of the bone pain that has been slowly coming on. This past weekend just seems to be getting worse.
My hemoglobin as of Dec. 31st was really good. Ferritin level was a 8 in July which was the last test that was done. I see Oncology/hematology and they both seem to know a lot about this. Dr has informed me that its just a matter of time before this develops into Leukemia. Were just trying to hold it off for as long as we can. I did blood work every 2 weeks for the first 7 months and in Nov. we went to once a month but Nov blood work showed stable but platelets started climbing.. not out of normal range but going up. Dec. again showed a rise, more than Nov. showed. This blood work fluctuation is just mind blowing, how fast your body changes. 2 week or 1 month.
My question is that I wondered if Hyrea could be part of the bone, body aches?

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Replies to "@loribmt Thank you for replying. I have informed them of the bone pain that has been..."

Hi @robinh06 I’m not sure if hydroxyurea is contributing to your bone pain and body aches. We have several members taking that med so I’m expecting someone will pop into the conversation and share their experience. Most side effects that were posted were fatigue and headaches.

One thing I do know with blood cancers it may take some tweaking to find the sweet spot with dosages or even mediation changes to get a balance between efficacy and side effects. There can also be changes within the blood condition itself. That’s why there are more frequent labs if a doctor notes changes.

Has your doctor discussed long term treatment options for you? Has an allogeneic bone marrow transplant been discussed or other medications?