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DiscussionMyelodysplastic/Myeloproliferative Neoplasm with Ring Sideroblasts
Blood Cancers & Disorders | Last Active: Jan 13 7:31pm | Replies (5)Comment receiving replies
Replies to "@loribmt Thank you for replying. I have informed them of the bone pain that has been..."
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Hi @robinh06 I’m not sure if hydroxyurea is contributing to your bone pain and body aches. We have several members taking that med so I’m expecting someone will pop into the conversation and share their experience. Most side effects that were posted were fatigue and headaches.
One thing I do know with blood cancers it may take some tweaking to find the sweet spot with dosages or even mediation changes to get a balance between efficacy and side effects. There can also be changes within the blood condition itself. That’s why there are more frequent labs if a doctor notes changes.
Has your doctor discussed long term treatment options for you? Has an allogeneic bone marrow transplant been discussed or other medications?