Anyone taking Tagrisso for Lung Cancer?

@medtech4 yes I am taking Tagrisso 40 mg

@medtech4
I am currently only on Tagrisso and will have my three-month follow-up soon. I’m glad to hear the side effects have been mild so far and that the Imodium helped. Overall, the side effects from Tagrisso have been mild and well tolerated. Wishing you continued tolerance and strength as you move forward.

I have been diagnosed with Stage IV NSCMLC, and I've been on Tagrisso, 80mg, for just over a month. So far I've been tolerating it okay. I do have some light swelling in the feet & ankles so I am trying to be more active and drink plenty of water, which I hope helps. Given my diagnosis, I don't feel sick, except for this nagging cough, which drove me to see a doctor in the first place. I've never been a smoker! But recently I saw an article and information about radon as a possible cause of lung cancer. My old condo sure looks like a good candidate, so I ordered a radon testing kit. I don't stand a chance of improvement if I'm living in a place that literally makes me sick, right?
Because of the cancer and Tagrisso, I just started infusions of Zometa, which should help with maintaining bone health. Those infusions are every 28 days. I have to have a blood panel the day prior to each. I feel like my body belongs to the medical community, with so many lab and doctor appointments!

@kedim I too had never smoked and also read about radon gas. I ordered the kits and tested our basement and bedroom, both results were so low they were not factors. It’s difficult to say why I’m dealing with this but in the end it doesn’t matter now just getting through this disease keeping it at bay and even trying to cure it. U do understand your desire to find out as I had done. At least you can put a check on your list of causes. Best of luck going forward.

@kedim Stage 2B NSLC. Non smoker too, routine chest Xray showed my diagnosis.
I've been on Tagrisso since November 8, 2025. I've also been tolerating well so far but just a week ago I noticed very mild swelling in my ankles too inspire of being active. Also I have been having tenderness on my fingertips and at times have skin cracks. Putting vaseline and moisturizing cremes through the day helps out. Weirdly enough, Ive noticed reddish smears on the tissue after a BM. It is red fresh blood, very mild. I think the skin dryness from Tagrisso is affecting different skin areas including there. So I'll avoid having constipation to prevent this fresh bleeding. PCP is aware and monitoring labs for anemia. It's good to be proactive with your care. I look at my medical team in a collaborative way. All the best on your care.

@firefly33 Thank you. I see the doctor tomorrow, 1/14, for a follow up. I hope my cell counts are okay. I've only been on tagrisso for 11 days and had my 1st chemo on Jan.2. I was diagnosed with stage IV lung cancer about a month ago with metastases to the bone and brain. I got radiation on my head where there was a painful bump, that now has gone down.

@tedvoelker You're right on with that comment. Grateful that you replied. Regardless of how I got it, I've got Lung Cancer and I need to do whatever I can to stay as healthy and active as possible, hopefully extending my time on Earth a little with the Tagrisso, which I started in early December. Thank you for reminding me of that fact. I hope you are doing well, too. Feel free to send me any other words you think I could use to improve my perspective.

@lala56 Thank you for sharing what side effects you are experiencing on Tagrisso. I have also noticed a couple of little cracks in the skin on my hands recently and will load 'em up with moisturizer. Aside from swelling around the ankles and a slight rash in that area, as well, I don't feel sick. The problems I had in the beginning of not being able to swallow easily and no appetite have passed. Now I need to make sure that I'm eating nourishing food and not just consuming calories to keep from losing weight. One of the things I have each morning is my Metamucil - 2 tablespoons of powder dissolved in a cup of water. That way, I'm not straining to poop and the bowel movement comes out much easier. Plus, Metamucil has psyllium husk that helps lower LDL cholesterol, which I've been working at. So far, so good. You sound like you have a fine medical team, and that means so much with what you're going through. Don't you just want to hug them all? Take care. All the best to you with your care.

I started on Tagrisso about a month ago after about 2.5 years on Tarceva after being diagnosed with stage 4 lung cancer (metastises on in lungs at this time). So far I think there are fewer side effects than Tarceva except that I feel a lot more tired (which might not be the Tagrisso, of course). My skin is still dry, nails still pathetic, but I have a bit more appetite and don't have such bad diarrhea. There hasn't been enough time to see if my hair returns to normal (it went extremely curly/frizzy - a bit like Beethoven or Einstein!) but I have great hope! Best wishes to you all.

@medtech4 I hope you had a good visit with your doctors. I’m not sure how much I can help, as I’ve only been on Tagrisso so far, but there are some Facebook groups that may be helpful. If you search for Tagrisso, EGFR, or Stage IV lung cancer, you should find several. Wishing you the best of luck.