I have a really bad balance problem

Hello @nor5501, Welcome to Connect. Sorry to hear you are having loss of balance problems. I'm sure the exercise is helpful to keep your leg and ankle strength up. Depending on the cause of your balance problems there may be a medication that helps. Mayo Clinic has some information on diagnosis and treatment here - https://www.mayoclinic.org/diseases-conditions/balance-problems/diagnosis-treatment/drc-20350477.

Have you seen a doctor about the problem you are having with your balance and foot drop?

@johnbishop
I am seeing a rheumatologist for my GCA/PMR.
Currently on Actemra injrction.
The most frustrating is the loss of balance. The fear of falling can be overwhelming.

@nor5501 Do you also have neuropathy in your feet or any other symptom? This may not be related to your PMR/GCA at all. Normally problems like this are due to nerve problems and/or muscle problems. What does your PCP say about this symptom?
I have PMR and Large Vessel Vasculitis plus neuropathy in both feet. Yes, my neuropathy is assumed to be caused by the PMR/vasculitis since it is bilateral and came on suddenly. So far I have not had Foot Drop. It is possible that the foot drop is not related to the PMR issues at all. I go to PT for balance training about 6-8 times each year and this helps keep me safe, possibly you can do this once they understand what is causing your problem.
Are you using a mobility assistance device like a walker or a cane? Possibly you should do this until then find and "fix" your foot drop. Falling is a big risk not worth taking as far as I am concerned. Personally, I use a cane.

I have years of training in balance. Training is what works. Balance is many things, one of them being a learned skill. Eye movement, timing, and focus are central. An expert needs to teach you.

Unless you have a medical problem that a med can solve, it’s hard to imagine any med that helps. You can’t take a drug to learn to shoot a bow and arrow well. Nor can most of us acquire the skills needed for balance by taking a pill. That is my opinion anyway.

As someone who has autonomic nervous problems (balance) I can certainly attest to the need for attention and focus. The autonomic nervous system exits the spinal cord at the lumbar region. And is subject to what is happening there. There are things that can interrupt the feedback loop that the brain has to have with the feet and the legs. No pill can help.