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Does anyone else have ferroportin disease, AKA hemochromatosis Type 4?

Blood Cancers & Disorders | Last Active: 3 days ago | Replies (13)
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When I looked into the Mayo Clinic in the past they did not do Hemochromatosis Type 4. I can look again. Thanks.

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Replies to "When I looked into the Mayo Clinic in the past they did not do Hemochromatosis Type..."
Janell, Volunteer Mentor | @jlharsh | Jan 13 7:51pm

@mayo99824 Darn!

I went back and read the article I linked above, Mayo Clinic Hemochromatosis Overview. I noticed one doctor listed that focuses on hereditary hemochromatosis research, Dr. William Palmer. He is also director of the Hereditary Hemochromatosis Clinic at Mayo Clinic in Florida. You will find more about him, including his contact information here:
- Dr William Palmer, Mayo Clinic https://www.mayo.edu/research/faculty/palmer-william-c-m-d/bio-20463187

I am interested to hear what more you learn, and how your daughter is doing. I hope you will come back and provide updates. Do you think Dr. Palmer is a possibility?

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