Meningioma: Anyone else? I'm frightened

Posted by pixie49247 @pixie49247, May 12, 2023

I just found out I have a Meningioma tumor from a MRI I had for something else. Doctor said they are almost always benign and am going to get an appointment with a neurologist. Anyone else have one of these. I’m getting very frightened now.

Interested in more discussions like this? Go to the Brain Tumor Support Group.

as72 | @as72 | Dec 24, 2025

In reply to @mkoch "@as72: I had a 2.7 centimeter meningioma removed, via surgery (a craniotomy) 2 years ago. Dr...." + (show)

@mkoch
I don’t see private message.

jayjuli | @jayjuli | Dec 30, 2025

My mother was diagnosed of meningioma early this month. All symptoms are obvious including loss of balance, blur vision etc. Am a Nigerian and the cost of her surgery is 11 thousand dollars, which I do not have to pay in a private hospital. Sadly the government own hospital has been on strike since October 2025. We just rely on dexamethasone that the Nurosurgon recommended. But it isn't doing much as surgery is the best option.

Randy Shields | @randallshields56 | Dec 30, 2025

In reply to @jayjuli "My mother was diagnosed of meningioma early this month. All symptoms are obvious including loss of..." + (show)

@jayjuli wish i had the funds to help, best thing i can do is pray for you and your mother that she find strength to go through this. maybe put an add in the paper or start a donation sight maybe, i believe in prayer so saying a prayer for you now-------------- sent. maybe try the churches in your area to get a donation pot going. have a blessed evening and keep faith its all we can do for certain.

jayjuli | @jayjuli | Dec 31, 2025

In reply to @randallshields56 "@jayjuli wish i had the funds to help, best thing i can do is pray for..." + (show)

@randallshields56. Thank you so much. God has been so Faithful. Thank you for your prayers too. God bless you.

Colleen Young, Connect Director | @colleenyoung | Jan 4 4:18pm

In reply to @tennesseeanne "I RECENTLY HAD A TUMOR REMOVED. IT WAS 7CM. IT WAS BENIGN! LIKE YOU, AN MRI,..." + (show)

@tennesseeanne, how was your recovery from surgery? How are you doing now?

hiktyd | @hiktyd | Jan 4 7:36pm

I would like to have updates on successful procedures

hiktyd | @hiktyd | Jan 4 7:37pm

In reply to @tennesseeanne "I RECENTLY HAD A TUMOR REMOVED. IT WAS 7CM. IT WAS BENIGN! LIKE YOU, AN MRI,..." + (show)

@tennesseeanne how are you doing

ami83 | @ami83 | 3 days ago

In reply to @geegeebabe "Hi. I was diagnosed with one in 2003. Doctor didn’t think I’d make it through surgery,..." + (show)

@geegeebabe I’m interested to hear more around your radiation experience. My partner is having gamma knife surgery next week for meningioma that’s 2.7 cm. They say she’ll be up and about with maybe some fatigue for a few days after but nothing more than that. Was that your experience?
I’m sorry about your recurrence but it sounds like your surgery was hugely successful.

janwaller | @janwaller | 2 days ago

I, too, would like to hear more comments about radiation. Looks like that’s what I will be going through soon…

ami83 | @ami83 | 1 day ago

In reply to @terid "Hi, I just found out I have a timy Meningioma tumor from a MRI also and..." + (show)

@terid
My partner has had a meningioma that the neurologist has been watching for 10 years. It’s has recently started to grow.
At 2.7 cm he said it was time to do something about it. The neurosurgeon recommended surgery and the radiation oncologist suggested radiation. My partner, who is 81, opted for radiation which is happening tomorrow - one big, strong blast. A second neurosurgeon recommended radiation because of my partner’s age. We hopeful. Would love to hear anyone else’s experience with this particular radiation (Gamma Knife Surgery). Meningioma’s are usually benign and tend to grow very slowly, if at all. Wait and see is often recommended.

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