Hi @mirakrye Well, that’s a heckuva way to ring in the new year with a change in your health status. I went through similar 7 years ago. Different disease but still that feeling of the rug pulled right out from under you.

PV or polycythemia Vera is one condition from a group of blood disorders called myeloproliferative neoplasms. A mouthful which is reduced to MPNs in medical terms. These conditions can include Polycythemia Vera (PV), Essential thrombocythemia (ET), Myelofibrosis (MF) and several others.

MPNs are generally characterized by excess production of blood cells in the body. In the case of PV, too many red blood cells are being produced.
From my understanding, Secondary myelofibrosis is a condition where the bone marrow's ability to produce blood cells is restricted, leading to fibrosis as a result of previous damage to the bone marrow. Which may be related to the PV.
Your hematologist will have a consultation with you to go over potential treatments.
Since you’ve already consulted Dr Google, you’re no stranger to seeking information. Here is a good article on secondary myelofibrosis for you to look into.
It’s by Healthtree.org: https://healthtree.org/myelofibrosis/community/articles/secondary-myelofibrosis

There are many members in Connect who have MF. Here are the results of that search.
https://connect.mayoclinic.org/group/blood-cancers-disorders/
And also, members with PV have many discussions that may be helpful for you: https://connect.mayoclinic.org/search/

Do you recall on your lab and BMB results the type of mutation which is connected with your Polycythemia Vera?

@mirakrye

Sorry to hear your diagnosis- I was also diagnosed with Myelofibrosis in 2025 but primary. I’m 66. Your age is definitely a good sign for better outcomes. Do you have a mutation?