@mmkennedy
I meant to wrote last night and send but i did not and my post disappeared.
What i will say today, is if i did not have super short hair, neuropathy in some fingers, I would not believe i had MDS and a transplant.
I looked up what you have, and it is excessive platelets. Blood is crazy. I had been a platelet donor at the Red Cross for 25 years. Continuing decreasing white cells and platelets after my treatment ended was concerning. I had gone through breast cancer and was happy my year after chemo was here and I could donate again!!! So, in September, I finally got my referral i wanted. My Medical oncologist had gone to another hospital after my treatment and as soon as my last pill ended, my NP from that oncologist left work as she decided to stay home, we with her baby. I suddenly had a new medical team in July of 2023. Yikes!!
I had had a blood clot in my thigh, so i reached out to that office. I got calls from scheduling and on the3rd try, a nurse that got me an appointment with a hematologist specializing in MDS. I got an appointment the next week, a BMB was scheduled the next week and by early Oct I was diagnosed with MDS. The result of the BMB was in my portal and i reviewed it and saw "unremarkable". I knew that meant "Nothing Found!!
But I am not a doctor. When i met with the doctor soon after, he read the report with me. Low-med MDS. He said i could watch and wait.
I thought about it. I had a TP53 mutation, 5 Q deletion and Brca2. The Dr said if there were 6 Kathy's, and none took any treatment, 3 would dead within a few years and the other three within 5 years.
With all of that, i said let's do the BMT. He said he would add me to the Bone Marrow Registry. I had 6 matches within the month and my final perfect donor at the start of the year.
I would hope that you ask the Dr what they feel would be best. With the 2nd BMB, the bloods truth would be apparent. They will have suggestions. Please keep us posted on what you are told.