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I think any time we feel different or sickly, we tend to think is something else wrong. I hate to think things like that because we all have been through so much. The doubt is always there about something else being wrong. Does anyone else feel this way? I am very proactive about my medical care and, especially my bloodwork numbers. I always want to know what my levels are running. Is everyone else this way? Just asking... I feel very comfortable asking my physicians questions about my health and about anything I do not understand. I am curious about everything. I have to know... How do you feel about asking questionsf?
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@chattykathy I am very much that way also, particularly checking results on the portal. I think I drive my PCP crazy. Too bad, it's my life and my health. I have mentioned that the doctor I was going to when I had my first HE episode told me I had Alzheimer's -- on the phone, no less. Since then, although I know the episodes were not related to Alzheimers at all I do worry about that.
JK
Life rewards Action XXL
@chattykathy, Yes, I think like you do. I am a very positive person, but I, too, wonder if something might be wrong. This is especially if there is a twitch or anything in my liver or kidney area. But It I feel the same twitch in another part of body, I hardly notice. I am also dedicated to taking my temperature if I'm not feeling 100%.
I am the same about bloodwork. I have my labs drawn locally and they are faxed to Mayo. I return to the lab after a few hours to be certain that they have been faxed and to get a copy of the results for myself. Always let out a "WooHoo" when I see good results. The nurses at the lab are used to me. In fact if I need to get labs drawn in between my routine 3 month order, they always ask if I'm doing okay.
I ask questions. And I carry my list of questions. I have never had a doctor to object to that. My team at Mayo encourages questions, anytime. The online portal is wonderful. And there is a 24-7 phone number for providers to call.
Rosemary
@linda59, I want you to know how much I appreciate you for sharing your point of view. As a mother, I can clearly relate to what you say. However, as a transplant recipient with 2 loving sons and husband, you are giving me a deeper awareness of what it is like from the 'other' side, the point of view of the caregiver and loved ones. They do not like to talk about it much, and you are helping me to understand some of what they have gone through.
From deep inside my being, my liver and kidney, I say thank you.
I am happy that your son is doing well.
Rosemary
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Our son has taught us not to think 'something is wrong' when he has a hiccup... we're learning to deal with things one moment at a time ... he usually shares with us AFTER he has dealt with things.. which we have mixed feelings about.. he doesn't want or need DRAMA! I can get very emotional and step into drama if I don't stay in Present Moment Awareness.
No problems asking questions. Knowledge is power! Have a lovely evening XXL