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Transplants | Last Active: May 2, 2017 | Replies (38)

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@contentandwell

@chattykathy, Kathy, you too have a wonderful day. It sounds like you are really on an upswing getting things more organized. I did do one closet on Tuesday, I plan to take a project on every day when I have time. We hope to move in the not too distant future so getting organized and throwing things out is a necessity. We planned to move a couple of years ago but then due to my health the move got put on a back burner. We are too old for this two story house, and it's too big for us, being just the two of us, but I do want to have some extra space for when my son who lives in CA visits and my daughter who lives in NYC visit.
Sounds like the nephrologist appointment went great, that's always such a relief.
I had a great after-transplant experience but recently I am really tired a lot, in fact I had to skip my morning water aerobics due to fatigue. I'm not sure if it's because my sleep is so interrupted by night sweats and bathroom trips, or what. I hope it's nothing else.
JK

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Replies to "@chattykathy, Kathy, you too have a wonderful day. It sounds like you are really on an..."

Yes, one project a day or when you have time. I used orange oil on my cabinets and chairs the other day while cleaning, but I did not get the table due to all the junk on it. It has become a pharmacy instead of a dining table. Between the glucose logs, medication trays, and other incidentals it needs a bulldozer to clean it off. I had planned to do it today but am just not feeling it. Tomorrow is another day... I have another DR apt on Friday with GI. It is time for colonoscopy. It all comes around regularly.

I, also wake up and have bathroom trips at night usually 3-4. I only drink water, no soda, teas, or coffee. I stopped drinking all that when I was diagnosed with diabetes. I don't miss it at all now and never even think about it. I make tea for the guys and it does not bother me at all. I use to drink tea by the gallons too, could not be without it. Funny how our tastes change over time and medical conditions.

About that move you will be doing, wow... I would hate to face that one at my age now. The thought of packing up all this stuff we have accumulated sickens me. You are brave to do this at this stage of life. With our bad health, (husband with heart ailments) we would have to get a lot of people involved. Good luck with your move. I hope it goes smoothly.

About weakness, I have days like that too. Could it be a low potassium level? When I feel washed out, I usually have a banana for a snack and picker upper.
Take good care, CK

We feel exhausted some days and we haven't been through what you guys/gals have!! Give yourself a break lol' 😉
We're supporting our son from a distance ... and that's very tiring!!
Let alone what you have been through !!?!!
Happy decluttering and moving. Go gently... we're only human!!
Happy days ladies. XXL

@contentandwell, It sounds like you are facing a gigantic task to catch-up and to move forward. I find that one of my most difficult part of cleaning out is letting go. My sons do not want most of the things that I have here. And since the recent passing of mother in law, I have felt a relief from the quilt that I held about purging some of her things as well as my own mom's things. Right now our goal is to simplify and to stay in place for a while. Our kids are within driving distance and don't spend the night.

Glad to hear that you have had a good recent transplant experience, too. It's too bad that we weren't all at the same place at the same time! That would have been an awesome waiting room experience!

Do not push yourself too hard. You are not very far out from your transplant surgery. So I think that it is okay to shorten or to skip your classes. That fatigue can be a real burden. Is it fatigue or overtiredness? Has your transplant doc mentioned if it is a possible side effect of the drugs, or is there anything else that might be causing it? I learned that my 'side effects" are just something I am going to have to live with. At least there is the satisfaction of knowing that there is not another cause.

Rosemary

@chattykathy We really must move. This house is way too big and on over 2 acres of land so too much to maintain -- don't be impressed, property values here in southern NH are significantly less than in many areas.
I know this task will be an enormous task but it must be done.
My potassium is fine. I am just tired. I think I am getting burned out from exercising at the club too. I hate exercising in the gym, and I do Pilates but don't like it much, so the pool is my most frequent activity but I am getting tired of it.
JK

@rosemarya It is a gigantic task and I too have trouble throwing out if it has any sentimental value. My son is also very sentimental and would like to have numerous things we have but between the fact that he is an apartment and hopes to eventually have more space, and he is 3000 miles away in southern CA things are still here.
Unfortunately I doubt my son and daughter will ever be within driving distance. I had really hoped my daughter would move to Boston since she still has friends around here and her fiance's sister is a doctor in Boston but neither of them like it there, so they will either be living in NYC where she lives and has an enormous network, necessary in her position as a free lancer, and he lives in Philadelphia where he has started a business. His business really does not rely on location though so he could probably do a mover easier than she could.
Wouldn't that have been something, to all be there at the same time! From stats I got from Compare Transplant Centers I was one of only two women in the last quarter of 2016 who had liver transplants at MGH! I forget what the other criteria were for that stat, age or MELD, maybe both. I saw my oncologist today and we were discussing when I got my transplant and it was almost definitely "early" (MELD 28) because my blood type is B. The average MELD at MGH is mid-30s.
Hmmm, in my mind fatigue and tiredness are the same. How would you distinguish one from the other? It really started in the last month so I doubt it has anything to do with the transplant. It does seem that some of the drugs do not effect you immediately but after some time. The hair loss has just started happening in the last few weeks. I will have to google my drugs to see if they could be causing this, fatigue or tiredness.
Right now I feel like taking a nap. We did Boston today to see my oncologist -- things were great, thankfully -- and I should probably go out and get some exercise. I am much better off if I go to the club early, right after breakfast. Plus I need to work off some calories.

We do have to learn to live with the side-effects, for sure. To me the worst is the constant "sweats". I've heard them referred to as "night sweats" but mine happen during the day too. It's far worse than menopause. It starts around my chest and neck and then moves all over, up to my scalp and literally to the soles of my feet. I hate them but it's better than not being here so I try to not complain about them much.
JK

@contentandwell, I noticed you asked what the difference is between fatigue and tiredness. For me, tiredness may be just being sleepy and in need of sleep, and/or a physical feeling of weakness after hard work. To me fatigue means physical and mental weakness without the sleepy aspect. In most cases, however, I believe they can be used interchangeably. Either way, when I am done, I am DONE! lol

@2011panc Thanks, I guess I am just plain old tired a lot.
JK