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Rosemary, Volunteer Mentor (@rosemarya)

This and That and Talk - My Transplant

Transplants | Last Active: Jul 27 9:34pm | Replies (1646)

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@rosemarya

@beckyy39, I am happy to welcome you to Connect. I am a a liver and kidney recipient, and I assure you that you are not going to be alone on this journey. We have many members like you, like me, who experience a frightening diagnosis, and who have the experience of that 1st appointment.
Beckyy39, I would like to ask you to share a little more about yourself so that I can connect you with others who are like you. What is the diagnosed liver condition that is cause fot the liver failure? Where will you be going for the evaluation and eventual transplant? What is your biggest question/concern ?

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Replies to "@beckyy39, I am happy to welcome you to Connect. I am a a liver and kidney..."

Diabetes and fatty liver – I have been an auditor for years and am still waiting to hear from SS disability so finances have been a worry. I live 30 miles from the nearest hospital and my doctors and have had 5 hospitalizations since December 1. Because I had 2 severe inpatient visits due to hepatic encephalitis with amnesia my doctor said I can't drive originally but now that I'm on Lactulose and Spiractalone, he is allowing me a 5 mile radius with another licensed driver in the car. I live with my 17 year old son who is my caregiver, but he only has his learners permit and is afraid to have me continue teaching him as it scared him greatly when those episodes happened and he's the one that saw it and had to call the ambulance. I'll be going to Jacksonville, FL Mayo Clinic and have to ride on non-emergency transportation.

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