Unbelievable burning in feet and legs

Hello @mildredsorrells, Sorry to hear that you are not getting much sleep due to the neuropathy pain at night. There is another discussion that I think you might find helpful.
-- Sponge Feet, Tingling and Burning: What can help me to get sleep?
https://connect.mayoclinic.org/discussion/sponge-feet/
Here's another one that may also provide some suggestions:
-- Neuropathy Pain at Night: What helps?
https://connect.mayoclinic.org/discussion/night-pain-2/

Praying you can get help with diet, exercise,maybe supplements. My addiction to coffee/ caffenne which irrates nerves as progressed my PDN to advanced prematurely. Also gabapentin helped almost 100% but had to increase until Dr recommended pregablin which in conjuntion with other meds and my age 76 is causing multiple side effects. Check Beers list criteria by geriatric assn. I have 3 meds listed "caution" and " avoid" its for those over 65yrs Pain drugs do not improve or slow dying nerves.

Sorry to hear about your pain. Sucks all around. Hey the one thing that I do to settle down my feet is I use the Rebuilder Tens like device. On my second one after 5 years. Not a cure but I use with warm or cold water in depending on time of year. I use it every day usually at night. It calms my feet down. Nothing else works outside of Gabapentin.

You may be able to find used. It may take a little time to adjust but that’s all I know that works for me. Tried everything as most have.

Best to you, happy new year MC

The Dr put me on gabapentin small dose at night and it has helped. No burning in feet and legs. I will get a shot in my back next week and hope it will help with some of the pain that goes down my legs to my an ankles. I am hoping 2026 will be better.

@mildredsorrells

may be worth asking Dr if consistent dose of Gabapentin would help. I find if I skip a dose (by mistake) it takes a long time to calm down. I have RX for 300 mg 3X a day. Works so much better than one dose at night. May be a reason for your RX I would ask. Can’t hurt

Sorry to hear of your pain. I have found that Nervive with the ALA is helpful and allows me to have a pain free night of sleep. All the best.

I had RSD or Complex Regional Pain Syndrome. With Allodynia
Valproic acid is one beneficial drug . Also gradually increasing the amount of pressure and touch to the leg using grad increases in a water bath with the tolerated temperature and using soft cloth to desensitize. There is a very helpful group in Ontario Canada run by a very smart well regarded lady . She had RSD and started this newsletter to give medically approved drugs being used and information on treatment that is current or being trialed . Her name is Helen Smart . In St Catherine’s Ontario . You can call any one of the support workers or here if working the lines . She has attended all the International Pain Management Condferences all over the world. I wouldn’t be walking around without any pain if not for Helen . There are tos on clothes, exs , people’s successes stories . I think anyone who has Compllex Regional Pain Syndrome would find her newsletter and very beneficial

I have CRPS II from a THR catastrophe anyway I can relate to your symptoms.
My pain specialist did a spinal block that reset the signals for the shooting pain and prescribed a compounding cream made of
Amitriptyline, gabapentin and lidocaine which I applied at night.
Not a cure but it might give you a break .

@gdndiva Do you have a link for her website or newsletter? I am un able to find her online.