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This and That and Talk - My Transplant

Transplants | Last Active: Aug 14 9:57pm | Replies (1677)

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@contentandwell

@rosemarya Things are going fine for me, post-transplant. The biggest downside so far is that I have developed osteoporosis. The endocrinologist I went to, head of the Bone Density Department at MGH, feels that my bones went downhill when I was on a higher dose of prednisone post-transplant. I am still on prednisone but a lower dose. They are not ready to take me off of it entirely yet, I asked about it in October at my yearly post-transplant appointment.
Other than that, and recovering still from my femur fracture in July which was actually high on my femur so really a hip fracture. The fracture exacerbated my recurring bursitis and now I am having a tough time with it in both hips. I am planning to see a physiatrist to see if she can give me some help. I hate getting cortisone shots, I am sure they can't be good for you to get repeatedly.

@glinda Congratulations on being about to get rid of a cane. I am sure you will enjoy having independence from it. I hope things work out well when you go to Rochester.

@2011panc It sounds as if you have had a tough year and yet you are able to maintain your good humor. That's admirable. How did things work out on the workup for syncope?

@almula I hope you continue to fare well back in your own country. You don't mention where that is, is it a country where they do transplants so they will be able to do well post-transplant?

@wildcat It sounds as if things are great for you. When I get leg cramps it is almost invariably from not having had enough water that day. Have you considered that?

@jodeej I hope Tim continues to do well. I think of you very often and pray for you and Tim. I know this will be a difficult new journey for both of you.

@danab It sounds as if your troubles are behind you, I hope they stay that way in 2020.

@livertrex I hope all goes well with your upcoming artery surgery. I had not heard of that before but apparently @gaylea1 has. Please let us know how it went when you are up to it.
JK

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Replies to "@rosemarya Things are going fine for me, post-transplant. The biggest downside so far is that I..."

@contentandwell I don't know how to answer your question about the workup for syncope. It was determined to be not neurological. My tacrolimus levels needed readjusting. They had given me massive doses of steroids that I then needed to wean off. I had an extended UTI that needed to be treated first with IV antibiotics and then followed with oral tablets. My needed to lower my: blood pressure medicine, calcium, and thyroid medication. I needed to add magnesium. I needed to stop my prophylactic antibiotic.
Since then I have been having severe heartburn and have replaced omeprazole with two other medications. I have developed a "frozen shoulder" and am in rehab for that. I am often quite wobbly and lightheaded.
So I am still struggling and making the best of each day. Thankfully my husband is willing to cook for my dietary needs.
Soups on . . . gotta go!