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This and That and Talk - My Transplant
Transplants | Last Active: Aug 14 9:57pm | Replies (1677)Comment receiving replies
@colleenyoung @hopeful33250 @rosemarya @contentandwell
Hi all! I have not fallen off the edge of the earth. lol Things have been chaotic at our house.
The fun stuff is that our son got married to his long time girlfriend that we just adore. It was a beautiful day at a beautiful location in Snow Canyon, Utah. A week of family and friends. I loved every minute of it.
My husband, Tim, was medically retired from his job due to his cognition issues. Therefore, I've been buried under many pages of paperwork and phone calls. We won't know the railroad retirement boards decision for 9-12 MONTHS. Until then, he will get disability pay.
Disability was a whole nother fiasco, as our new family doctor abruptly left the practice and we had to find a new one to fill out the needed paperwork. It is done, all is filed and it was approved after several weeks of no pay coming.
So, some days I am struggling to keep my head above water. Others I'm proud of myself for getting done what needed to be handled.
In a few weeks we will be at Mayo for Tim's one year checkup. It's hard to believe that it has been a year already. It has been very eventful!
Thanks for inquiring about me.
Many blessings,
JoDee
Replies to "@colleenyoung @hopeful33250 @rosemarya @contentandwell Hi all! I have not fallen off the edge of the earth...."
@jodeej I am so glad to hear from you, I was getting concerned. It sounds as if you have everything possible under control, good for you.
I sincerely hope things will improve for Tim's cognition.
It doesn't seem possible that it's been a year since Tim's transplant. I presume during the intervening year he goes locally to a transplant center for check-ups. I had still been going monthly for lab work but it has been so consistently good that I got a call last week that I can now go bi-monthly.
I really want to try yoga too but I keep putting it off but you make me want to try it even more. I'm not good at new things, I always hesitate, and I don't have anyone to go to it with. One of these days I'll take a deep breath and just go though.
Do be proud of yourself. You are doing a great job.
JK
@jodee
It is so very nice to hear from you!!! I'm sure you were buried in paperwork for a while, but I'm glad everything is done now and you are able to relax.
The wedding sounds like a beautiful event. I'm so glad that you love your new daughter-in-law, that is such a blessing.
So glad to have you back on Connect, we did miss you.
So great to hear from @jodeej. What a lovely reason for your absence - a son's wedding to a girl you both adore. It sounds like it was a great time with family and in-person connections.
You're not alone in being buried by paperwork. In fact there is a discussion dedicated to it in the Caregivers group. You may wish to add your tips or ask questions as you work your way through the process:
- Too much paperwork. Its overwhelming. https://connect.mayoclinic.org/discussion/too-much-paperwork-its-overwhelming/
Welcome back!
@jodeej, I am happy to hear from you. You, your husband, and family have had really busy year since the transplant. I can easily imagine that the wedding was espcially beautiful, and all of you gathered together to celebrate life andlove.
When you get your head above water and feet on the ground, I hope that you will find some time to meet a whole new group of pretransplant patients and their caregivers.
Have you and Tim made any plans to celebtare yout 1st anniversary of his transplant? Tom and I like to go out for a 'special' dinner and we share an iced tea toast!
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@jodeej Deep breaths. Shake it all off. Roll your shoulders. Relax as you can. We're here for you!
Ginger