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This and That and Talk - My Transplant
Transplants | Last Active: Aug 14 9:57pm | Replies (1677)Comment receiving replies
Hi
I am from Scotland and I had my liver transplant five years ago. My first year was quite tough as I seemed to react badly to many of my meds but now, five years on, I am fit and healthy. I am on only 0.5 mg Prograf ( tacrolimus) twice a day and take nothing else except Adcal for my Vitamin D. Some doctors have been surprised that I am on so few meds but I am very well and my liver results are excellent. I've been 'stable' on these meds for four years now and I've never had a rejection episode.
So, take heart, it is difficult in the beginning but your team will eventually find the right combination of meds for you.
May I also say 'thank you' to the Mayo Clinic for providing this very welcome forum for transplant patients. I was a student in St Paul many years ago and I have used your Mayo Clinic website for many years.When I got sick, it was invaluable. The transplant experience is very different here, not least because I didn't have any financial worries at all but we share many common problems and it's always good to talk....
Replies to "Hi I am from Scotland and I had my liver transplant five years ago. My first..."
@wildcat I am glad to see that you are doing well and have been stable for some time. Thank you for sharing. My interest was tweaked when you said that you are on only 0.5 mg tacrolimus twice daily for immunosuppressants. I have a series of questions regarding your tacrolimus medication: 1) do you have regular blood levels run? 2) what is the range your physicians want you to maintain? 3) what is your level? and 4) does your level deviate or is it stable? I am in the USA and have a pancreas transplant and am currently going through changes in my tacrolimus dosages and levels. Thank you for whatever you are willing to share.
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@wildcat, Please accept my sincere welcome to Mayo Connect. Mayo Connect exists so that patients like you, me, and all of our members can share their own health experiences as a way to help others. We are all in this transplant journey together. Like you have so well expressed, "...we share many common problems and it's always good to talk..."
Before your transplant, when you were sick, what did you find to be most helpful to you, on the Mayo Clinic website? When did you find Mayo Connect?