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Ostomy: Adapting to life after colostomy, ileostomy or urostomy
Ostomy & J-Pouch | Last Active: Jan 10 12:43pm | Replies (457)Comment receiving replies
@hanseron Okay, your comment here is not recent, but responding in case someone reading can help. We cannot find an ostomy nurse anywhere in the Chicago area that can help my mother-in-law. She is now 92, has managed her ileostomy bag and care independently for over 50 years. She is in good health physically, but is having memory issues and an ostomy nurse would be very helpful. We have not been able to find an ostomy nurse who works outside of a facility. She lives in a facility, but they do not have any staff that can help. Family is helping, but she is getting worse at handling changing the bag, and so the future is scary.
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@katieliz , I am heartbroken to think of your mother in law having these problems and your trying to find help that is available in a home care facility. the care nurses from the hospital who join our ostomy monthly meeting, they don't work outside of the hospital, you may need to find an independent person to go in and help, I have heard that the facilities don't take care of ostomy patients. That it is the families responsibility. Maybe you could talk to someone at the hospital and ask if they know of an independent person who can do this for you. I wish I had more information to give you. Maybe put an add in a paper or on a website.
I have thought of this for myself. I am 78 and not sure what my future will be and am worried about care in a home if I have to go. I have no family around that can be a help to me. God Bless you and good luck