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Recently diagnosed with MDS with anemia and would like to connect
Blood Cancers & Disorders | Last Active: Apr 22 9:28am | Replies (117)Comment receiving replies
Great to here your results.
What was your hemoglobin start point, and did you reach this level new elevated level with transfusions PLUS your medication ?
The highest I have gotten has been 9.0 with transfusions.
Revlimid and Reboslyl ( spelling) both failed to raise my hemoglobin and I am totally dependent on transfusions.
I will look up your drug info.
Thank you.
Replies to "@lindak123 Great to here your results. What was your hemoglobin start point, and did you reach..."
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@montauk Hi. My hemoglobin hovered between 10.0 and 10.6 when I was first diagnosed. It dropped to 9.3 and my Oncologist started me on the injections. The last time I had my blood work done, my hemoglobin was 10.6 so I didn't get the injection.I have not had a blood transfusion. My doctor mentioned that he would infuse iron if needed. I am tired most of the time and take lots of naps.