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This and That and Talk - My Transplant

Transplants | Last Active: Aug 14 9:57pm | Replies (1677)
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@gaylea1

@rosemarya . Hello Rosemary. Just a quick update on my last ERCP to place stent in my bile duct. They managed to insert a plastic stent without causing any pancreatitis this time. 3rd time lucky? They are going to replace it the 3rd of June with a metal stent. Hopefully this will go smoothly. I still have no feeling when touching my stomach and I can feel all sorts of scar tissue below the skin both sides of my scar and into my right side. My appetite is still off and it hurts if I eat more than a few bites at a time. We are now 4 months post transplant. My energy has not returned yet and I still get dizzy walking or moving about. Just taking one day at a time for now. 💓

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JK | @contentandwell | Apr 1, 2019

@gaylea1 It can be a long process, but you are making progress. I am sorry your recovery has been so difficult and lengthy. Your energy will be back any day now. I am sure of that. I know I didn't have any real problems after my transplant but it did take a while for the energy to get back up there where I wanted to be. I took naps in the afternoon more often than not.

Don't worry about rejection, as long as you take your immunosuppressants. I often think, what would I do without my smartphone to remind me? They are Godsends when it comes to things like this. It's easier for me now because they switched me to a once a day immunosuppressant so I get up at 6:30 to take them, and return to bed, hoping to get some more sleep in before getting up for real at 7:30. I do that so I can take them without food and take a smaller dose. When I started that I went from four mg to 2.5 mg. It's easier too when traveling to take them without food. When we have visited our son in Denver I just get up at 4:30 their time to take them, and since I don't need to take them with food that works out well for me.
JK

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