@dadcue I am 79 and diagnosed with PMR 1 year ago, 15 mg Pregnesone helped my pain and stiffness right away and my blood sugar shot to 600. Was prescribed Forxica, insulin, and Ozempic. Now on Kevzara, lost 20 lbs., tapered pregnesone to 2 mg, A1C 5.5 and off insulin.
Thank you for your comments.
I have to believe that if one can stay or get to “lean and limber” surely this will benefit going into remission or help one from going into another flair. I have no scientific evidence of this but common sense tells me it can’t hurt to try. Please let me know if you are “lean and limber” but still struggling with PMR. In other words, does this disease have anything to do with obesity? Can WE reverse this curse by simply getting in the best shape we possibly can which includes a strict diet, exercise and stress management.
@tyman23 There is no doubt that your diet can contribute to inflammation enabling. Anti-inflammatory diets are well understood and published widely. That would be a first step. The core problem is the medical world really does not know what causes most autoimmune diseases and without understanding the cause it is impossible to truly gain control. This support group has members who were in prime shape as well as more sedentary members. They all seem to struggle.
Based on my journey I have become convinced that PMR is elusive and understandably is able to mask other problems not to mention that the treatments for PMR cause their own problems. Somedays are Rat on a Treadmill days, others not so much.
I would totally agree that having a goal of being in the best shape possible cannot possibly hurt.
I started on tripeptide the same time. I started prednisone. Started out at 60 mg prednisone. I am down to 14 mg. This all started 7 July. I have lost 10 pounds, which doesn’t sound like much for 5 1/2 months, but my primary care keeps telling me this is a huge win because I haven’t gained being on this long-term prednisone treatment so far. Keeping to a great exercise program has been difficult because of the fatigue, but I keep pushing through.
Thank you for your comments.
I have to believe that if one can stay or get to “lean and limber” surely this will benefit going into remission or help one from going into another flair. I have no scientific evidence of this but common sense tells me it can’t hurt to try. Please let me know if you are “lean and limber” but still struggling with PMR. In other words, does this disease have anything to do with obesity? Can WE reverse this curse by simply getting in the best shape we possibly can which includes a strict diet, exercise and stress management.
@tyman23
My bmi is 19 so I am lean. My mother was lean as well so I don’t think PMR is weight related. We both had healthy diets and were active individuals. It’s puzzling why we got it as we are not even in the “northern European” group that is typically affected.
Thank you all for sharing! This board really helped me when I was first diagnosed. On a light note, my nickname is Navaho because of how I look and from what I’d been told about my heritage. As it turns out I’m Scandinavia Indian, not American, lol! Take care and keep moving!
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@jmpuyallup
Yes ... Actemra turned things around for me too. I'm so happy to be off prednisone. Nothing ever got better on Prednisone except for the pain.
@tyman23 There is no doubt that your diet can contribute to inflammation enabling. Anti-inflammatory diets are well understood and published widely. That would be a first step. The core problem is the medical world really does not know what causes most autoimmune diseases and without understanding the cause it is impossible to truly gain control. This support group has members who were in prime shape as well as more sedentary members. They all seem to struggle.
Based on my journey I have become convinced that PMR is elusive and understandably is able to mask other problems not to mention that the treatments for PMR cause their own problems. Somedays are Rat on a Treadmill days, others not so much.
I would totally agree that having a goal of being in the best shape possible cannot possibly hurt.
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1 ReactionI started on tripeptide the same time. I started prednisone. Started out at 60 mg prednisone. I am down to 14 mg. This all started 7 July. I have lost 10 pounds, which doesn’t sound like much for 5 1/2 months, but my primary care keeps telling me this is a huge win because I haven’t gained being on this long-term prednisone treatment so far. Keeping to a great exercise program has been difficult because of the fatigue, but I keep pushing through.
@tyman23
My bmi is 19 so I am lean. My mother was lean as well so I don’t think PMR is weight related. We both had healthy diets and were active individuals. It’s puzzling why we got it as we are not even in the “northern European” group that is typically affected.
Thank you all for sharing! This board really helped me when I was first diagnosed. On a light note, my nickname is Navaho because of how I look and from what I’d been told about my heritage. As it turns out I’m Scandinavia Indian, not American, lol! Take care and keep moving!