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This and That and Talk - My Transplant

Transplants | Last Active: Aug 14 9:57pm | Replies (1677)

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@rosemarya

Hi to all. I introduced "This and That" Discussion nearly 2 years ago and during those 2 years, we have shared, cried, celebrated, and encouraged each other thru a variety of transplant issues.
I invite you, past, present, and new members to send a note and share an update. How are you doing? Any new questions? What can we celebrate?

I'll go first. Today, I feel like a lazy achy old lady. I took a long nap, and bundled up in blankets because I was cold and developing a fever. It has hovered at 100,3 and my transplant information says that at 101 to 'call doctor'. Of course it is a Saturday afternoon and the doctor is not available until Monday! I do have access to immediate care until 8 PM if I need it. I feel good, but plan to stay hydrated and to momitor tonight.
Has anyone else ever had this experience? What do you do?

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Replies to "Hi to all. I introduced "This and That" Discussion nearly 2 years ago and during those..."

Hi Rosemary, I'm actually doing good it's been 1 year and 1 month since I was hit by the car but I'm getting stronger everyday I passed my yearly physical in January of this year it's hard to believe I am 8 years post transplant(heart) I have finished physical therapy now and I work out at the YMCA here but found out that my right leg has arthritis in it now where the steel screws and plate is that's the only thing that isn't as strong as I would like is my right leg the pain never goes away and I can't take any anti inflammatory medication for due to transplant I still struggle with anxiety and the PTSD but I thank God for my counselor she helps a lot the only problem I have is I still have brain fog after all the surgeries I had to have last year and it frustrates me because I have trouble remembering the dimple things that I used to know and remember just wanted to say Hi and update everyone on how I'm doing I may not be on here a lot but I try to check my posts for mayo connect every day I'm just working on getting stronger and better right now thanks for listening when I need to talk.
Always Glinda

Ive had those low fevers also and usually a couple of Tylenol and that takes care of it. Luckily I've never hit the magic 101.4 level the drs required a phone call. I think its due to dyhadratetion also and that was confirmed once with the team. I myself are doing good but still fighting this side problem of CMV from the donor heart and Parvio B19 virus. Neither causes any symptoms but twice now i had to get whole blood due to low hemaglobin. They tried this last time a week in hosp to receive IVIG antibodies and will find out in a couple of weeks if it killed the b19. But i feel great working out and playing golf no real complaints.

@rosemarya
Out of the question...you are not allowed to be sick! I dont know how these things go but how long afer transplant do you worry about rejection? Curl up and snooze...drink lots of fluids and take what ever mefs you have been instructed. Of course its Saturday...just to make us worry a little more...lol
I go to the local cardio Dr. On Monday to see what he thinks. I had an ultra sound and bloodwork and will discuss all that with my PCP Tues. Have a 2 day appt with Mayo in Jax on the 16th. Thats a 4 hour trip but always well worth it
The good news is..my faughter Emily is coming to FL to visit next Sunday.
We will be doing some serious boating and beaching!
Please keep us posted...Im sending uou virtual hugs, prayers and chicken soup!

@rosemarya the only time I had a fever was when I had legionnaires disease and my temperature was 103. That definitely required a drive to Boston. I was so happy it was just something that they could take care of with antibiotics. Overall that hospital stay wasn’t too bad! Except for the food - awful.
JK

@rosemarya Please take good care of yourself!

Rosemary, I hope your fever is not because of anything significant and that you’ll feel better soon.
I’ve had some stressful days with my husband in the hospital because of a blockage in his small intestine. He’s been home for 2 1/2 weeks and finally is close to recovered. Last Sunday our son-in-law had a heart attack. On Sunday night our little dog Bella died after finding out a week earlier that she had kidney disease, at a cost of almost $500.
The good news is that today we leave for Rochester Mayo for my one year checkup. My blood work has been coming back normal and I feel good so I’m not expecting any problems, but there’s still some anxiety. My donor daughter will come with to have her blood work and urinalysis and will keep my husband, who has dementia, company. 🤞