Does anyone have enlarged lymph nodes in their neck from Long Covid?

Posted by lindy1965 @lindy1965, Sep 15, 2023

Since starting this nightmare in early 2020, I have had this large ‘lump’ sitting over my carotid artery on the left side of my neck. When I first noticed, I showed it to my neurologist at an appointment thinking it was a lymph node. He said, I can see your heart beat through the ‘lump’ and he showed visible signs of concern and immediately sent me for MRI of my carotid arteries. That was all fine, thank goodness. From there I was sent to a vascular Doc for ultrasound, CT scan etc… all results came back normal.
Today at a physical with the nurse practitioner at my PC office, I mentioned that it is still very much present. Now, 2 years later, they are super concerned that it is an enlarged lymph node and are sending me for further diagnostics. I feel like this should have been explored when I first mentioned it. 🤷‍♀️. Does anyone else have this symptom?
So of course now I’ve got one more worry.

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I have had it predominantly on the left side of my neck for 4 years now. My skin was also discolored. No answers. I was part of the long covid clinic in Boise, Idaho. I believe it was primarily data collecting and has now been closed.

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Yes, I have lymph nodes on both sides of my neck for going on for four years. Tests show nothing wrong . It is long covid!! I have so many other symptoms . Long Covid has ruined my entire life!

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I have that on and off. Nothing comes of it.

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Profile picture for misslauren @misslauren

Yes, I have lymph nodes on both sides of my neck for going on for four years. Tests show nothing wrong . It is long covid!! I have so many other symptoms . Long Covid has ruined my entire life!

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@misslauren
Me too ☹️

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Profile picture for pcraig56 @pcraig56

I have had it predominantly on the left side of my neck for 4 years now. My skin was also discolored. No answers. I was part of the long covid clinic in Boise, Idaho. I believe it was primarily data collecting and has now been closed.

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@pcraig56 I noticed that since 1 year after getting long covid I'm on year 5 almost now, both sides if my throat and the middle under my jaw have been swollen , my tongue swell on both sides every few weeks as well. Overactive immune can cause this . I know for me I have bad to do all my own research so far as living in Maine no Dr so far will say squat about long covid except I have COVID toes I was told and my eyebrows falling out 4months after getting. Install Covid19 back in early 2020. If you are interested I can leave you the medical Dr papers information so you can look up what you have and research it. I don't use Google to do so though as it blocks the ability to get most the info. I use Firefox or Duck Duckduckgo and I take screen shots so I can provide it to mg Dr

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suefish. Now also broken rib but also have had neck issues.

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Hey
Yes I have so many issues and I have noticed for a few years my left gland area of my throat under my left ear was tight and hurt. Even in bed I can't lay on my right side because of right knee bone on bone. I have to keep moving pillows to not have pain. I can't find any doctors in my town and we have over 875,000 people living here with 10 hospitals. I have started reading about the Vegas nerve issues from covid 19. All of my issues seem to have a lot to do with Neurological issues. Ringibg ears, hearing headaches, brain fog. I want to have someone look into this. Your Vegas nerve can cause so many issues with the wiring in our brains that can affect all organs in our bodies. Also my pulse is always in the low 40s. Best of luck to all of us. I have spent thousands of my own money getting blood test and brain scans.

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Yes!! I started having sudden health problems 4 days after the first Pfizer vaccine. A slew of debilitating symptoms that is just like long covid but more accurately Long Vax Syndrome and to this day and even as I write this my neck lymph nodes on both sides hurt and get hard/enlarged. Last year I was dx with Lupus SLE and been dealing with treatment for that. I have also noticed a lump on my left clavicle, just above the bone. It isn’t hard but soft and I think this might be a swollen lymph node too. It doesn’t go away. Last summer I showed my GP and he referred me for an ultrasound but I never heard from them, I called my GP office and they said they’d call and don’t get back. Saw my GP another month later and told him I never heard back for an ultrasound. Then Xmas a month later. I had given up just thinking that it can’t be serious otherwise they would have made sure I had my appointment for the ultrasound immediately. I just received the appointment for the end of February 🤦‍♀️. I have been so sick since the vaccines(not covid) with a laundry list of horrible chronic symptoms and the medical community really don’t want to do or say much. I have really given up by now. I’m just trying to live the best I can with the symptoms and try not to think about the fact that I feel like I’m slowly dying. Literally dying. I had a Rhumatologist say that the swollen glands are a symptom of MECFS and I get this symptom almost daily. Often when I’m fatigued. The other swelling near my neck/clavicle doesn’t hurt at all and like every other test I get will likely come back normal. I try not to get anxious but it’s been a five year nightmare that won’t end and a constant energy draining self advocacy marathon that has no end in sight. Good luck and try to keep positive and think about other important aspects of your life. Try to reduce the space and time this chronic disease takes from you ❤️

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Profile picture for earthangel @earthangel

I thought the lumps on both sides of my neck was lymph nodes swelling. My ENT told me it was my salivary glands. They stay swelled all the time and get larger which makes it harder too breath or swallow.

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@earthangel hello, were you ever able to correct this issue, I have had it for over a year and I am so miserable

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My doc didn’t think of anything h of these, but I pretty sure that it’s linked to long Covid.
suefish

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