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This and That and Talk - My Transplant
Transplants | Last Active: Aug 14 9:57pm | Replies (1677)Comment receiving replies
@ contentandwell @rosemarya @jeanne5009 My direct team consists of my transplant hepatologists no other docters per se. I was on the transplant floor but was bumped to general surgery floor. I have been very concerned about this floor. I share a room with an older gentleman who has no control of his bowels and regularly soils his bed and himself. My CT Scans and ultra sounds show no signs of stones or blockages just narrowing. I talk to my doctors regularly and they are not sure why this is happening. My nurses are A One and we discuss each and every medication I take. I have a history of depression and have been trying so hard to keep positive.
Replies to "@ contentandwell @rosemarya @jeanne5009 My direct team consists of my transplant hepatologists no other docters per..."
@gaylea1
Sounds like you are doing everything you can. Keep thinking good thoughts. Ask to speak to the Patient's Advocate in the hospital. Sometimes hospitals need a push to do the right thing.
I did not know that hospitals put male and female patints in same room for prolonged care/trearment. Your hospital must be really crowded. I hope that your situation can soon be ammended.
When I have needed hospital or overnight observation locally, I am also uncomfortable about being on the nontransplant floors. Happy to hear that you have established a good relationship with your nurses. It is also reassuring to hear that your doctors are involvd and that they are communicating with you. I know that is frustrating when there is a 'unknown' factor, especially when feeling so poorly.
Your inner strength has gotten you this far, and I feel every confidence that it will continue to do so.
I found great comfort and courage by speaking with the hospital chaplain. Fortunately, I had a good one on my floor. I don't know how you feel about that, but might be worth a try.
Is there a window where that you can look out? I had a window in my room, and asked the nurses to keep my shades open day and night so I could look outside. Sometimes I would sit at a window in the hall and just absorb a tiny bit of 'ordinary' life...and dream of when I could rejoin it.
I send prayers for you and for your medical team. I pray for a diagnosis and a satisfactory treatment.
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@gaylea1 You have been staying positive, I have been very impressed by how much so. Keep that positive attitude.
I presume if you got bumped from the transplant floor it was because it was full of people just having had transplants. I would ask them to put you back there as soon as there is a vacancy. Like @jodeej I am concerned about your roommate.
At least your nurses are great. Nurses can make or break you when you are hospitalized. Some of them truly are angels.
JK