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Hello All! New to this...anyone here diagnosed with plasmacytoma ?
Blood Cancers & Disorders | Last Active: Jan 10 1:51pm | Replies (5)Comment receiving replies
I was this past year, though a recent PET/CT showed diminished activity (didn't light up and shows the areas to be reduced in size), so now they are wondering if it may be something else, like an inflammatory reaction of some type. Since I am asymptomatic, we are just waiting and doing another PET/CT later this month (actually next week) along with more lab work. Biopsy of one of them did come back positive for the plasmacytoma, so things are weird somewhere. Feel like I am in limbo, lol. Maybe I will know more soon, but for now I am just along the lines of "wait and watch", I guess.
Yeah, lots of good info here about MM in general, though not much I have noticed with solitary plasmacytoma. Or I haven't found it, at least.
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@aoifet Thank you for checking in. Very much appreciated. Your input certainly helps, and it does provide hopes and encouragement.
I was diagnosed with solitary plasmacytoma last April. After having very complexed spine surgery (L3 completely 'disintegrated' by the presence of tumor) where the samples of tumor were sent to lab and following the bone marrow biopsy, the results came back positive.
Did 25 of the radiation treatments last summer...no chemo necessary.
However, after last two PET/CTs (doing it every three months) and the recent lab tests, the 'picture' looked good. Per oncologist's statement, the first 18 months are crucial. The survival rate 50/50... needless to say, moving forward with the positive mindset (and the help of meds against anxiety lol) to beat the odds!!
Yes, I did a good amount of research (which, need to admit, didn't seem encouraging) and figure out that plasmacytoma IS very rare form of cancer...
Hope your tests will show it was "just" some form of inflammatory reaction (that's how my latest PET/CT images looked like, per radiologist's findings), which I'd read, that happens too.
Stay in touch 🙂
best.