My transplant journey had plenty of twists and turns also. At the very outset my pre-coordinator told me that my transplant was not a cure all. It would be an exchange of one set of problems for another. I came through the surgery with flying colors. I was out of the hospital in 5 days thinking “ that wasn’t as bad as I thought it would be “. My first setback came when I came down with CMV. I used to describe my symptoms as having mono on steroids. We worked our way through that and I thought I was in the clear. Then came the big one GVHD. There is nothing that will scare you more than going online and reading the medical studies on your condition or having your medical team tell you it’s a condition so rare in solid organ transplants that they don’t know how to test for confirmation or even how to treat it. All you can do at that point is trust your team. So there will be setbacks and there will be good days & bad days and eventually things will calm down & it will be smooth sailing. Keep your spirits up and maintain a positive attitude.