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DiscussionThis and That and Talk - My Transplant
Transplants | Last Active: Aug 14 9:57pm | Replies (1677)Comment receiving replies
Replies to "@rosemarya Hi Rosemary. Well after the 3 surgeries last month I'm back to hospital again tomorrow..."
@gaylea1 I didn't have many of your complications, but the diabetes one is pretty common I think due to prednisone. I had to be on insulin for a while until they decreased my prednisone dosage.
I hope the bile duct problem is easily resolved. Looking forward to hearing that that everything is A-ok.
JK
My transplant journey had plenty of twists and turns also. At the very outset my pre-coordinator told me that my transplant was not a cure all. It would be an exchange of one set of problems for another. I came through the surgery with flying colors. I was out of the hospital in 5 days thinking “ that wasn’t as bad as I thought it would be “. My first setback came when I came down with CMV. I used to describe my symptoms as having mono on steroids. We worked our way through that and I thought I was in the clear. Then came the big one GVHD. There is nothing that will scare you more than going online and reading the medical studies on your condition or having your medical team tell you it’s a condition so rare in solid organ transplants that they don’t know how to test for confirmation or even how to treat it. All you can do at that point is trust your team. So there will be setbacks and there will be good days & bad days and eventually things will calm down & it will be smooth sailing. Keep your spirits up and maintain a positive attitude.
gaylea, I admire your positive attitude! "Every stage is a step forward though".
Your message is a very important one and I want to thank you for sharing it. When we see numbers like that (50%) we are given assurance that we are not alone. Throughout my entire disease and transplant journey, even with my dear husband and family at my side, I felt alone in the sense that no one else was experiencing the same symptoms as me.
I'm praying for your numbers to return to normal, even if an intervention is needed.
Did you have an opportunity to have a Christmas/New Year with family?