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This and That and Talk - My Transplant

Transplants | Last Active: Aug 14 9:57pm | Replies (1677)
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@jeanne5009

@contentandwell
My 6mo bloodwork was done and I dropped 2 meld points to 6. Dr. doesn't think it's related but I haven't ruled it out yet. The ER doc put me on prednizone 20 1 per day for 5 days. It's helping the itch but the rash is still there. The last 3 rounds of prednizone didn't work either. Well see.
Guess the allergist and patch testing is next.
I have a hard time rationalizing how I could be Stage 4 End Stage Cirrhosis with a Meld of 6 but I'm thankful for it...I guess... Can this all end anytime soon? I suspect I'm in for the long haul...Im pushing 69 maybe I'll just die from itching...lol

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JK | @contentandwell | Dec 30, 2018

@jeanne5009 I too find it very confusing how a person can have such a low MELD yet be Stage 4 End Stage. From what I understand the MELD indicates whose needs are most imminent, but then how can you be Stage 4 and not be in dire need of a transplant?

With that MELD it does seem like you may be in for a long haul. I received my transplant two days prior to my 69th birthday, I was MELD 28, and due for an increase in my MELD at that point. They were not anticipating that I would have a transplant for a couple of more months but somehow things happened for me sooner than anticipated, probably either because of blood type or size. I happen to have been given a lot of information about my donor from her parents and she was the same height as me.

I cannot imagine the itching. Obviously, it won't kill you but it must be so extremely annoying.
It will be interesting to hear what the allergist finds out.
JK

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