Has anyone experienced vision changes on Hydrea?

If you have PV, vision changes is part of the disease. You can get blurry vision randomly. I used to think I was tired or needed glasses and then after being diagnosed, I had my answer. It’s not often and only lasts for a moments at a time.

Thanks for replying. I should have said I have ET.

@nande I have had vision changes from the ET. Now on HU, some improvement but still have symptoms. HU may also affect vision, I am not sure.

I did after I had been taking it for 6 months. I went to my eye dr and my cornea was swollen. called hematologist and he took me off immediately

@eloise999 thank you

Nausea can be a side effect of HU, especially at first. My first prescription for HU automatically came with compazine, anti nausea drug. You might call the doc's office and ask for it. Most docs try to start people out on a lower dose of HU and work up as necessary. Less of a shock to the system.

I sometimes get flu-like symptoms in the evening and night sweats even if I keep my bedroom like an icebox. (Husband has his own room so I can maintain the deep freeze.) This is part of the package with blood cancers, I think. Lack of sleep or not enough water seem be contributing factors.

Blurry vision, migraine-like auras, and other visual distortions can be symptoms of ET. I had them before and after starting HU. My dad had ET, and he found it difficult to count objects in a picture. He could read OK, though. Unless oncologists can see something wrong with your eye structure--clot, swelling, irritation, etc--they are usually uninterested in addressing the problem.