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CALR exon 9 mutation w/translocation of chromosomes 10 &13

Blood Cancers & Disorders | Last Active: 5 days ago | Replies (25)
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Evening kids...

Well...Had bloodwork done yesterday and my platelets increased from 788k on November 5 (2025) to 830k January 5 (2026). I am obviously shocked, discouraged and sad because I was hoping the magnesium would've helped to reduce even a little bit.

This morning my hematology oncology nurse called and she says with them increasing the doctor recommended I start on hydroxyurea "baby dose" of 500mg, must be a big "baby". I will start tomorrow night. I am continuing the magnesium 500mg daily because, at the very least, it's helped with my headaches. I am very discouraged, I don't want to be on a chemotherapy drug for the rest of my life!!

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Replies to "Evening kids... Well...Had bloodwork done yesterday and my platelets increased from 788k on November 5 (2025)..."
janemc | @janemc | Jan 7 6:59am

@daelitesmom

Of course you feel discouraged! It's awful when our own blood turns against us.

It's really hard to take that first capsule of HU.

I can only hope that, through this forum, you'll see that many of us have found HU to be really helpful.

For me, it's brought relief from the debilitating headaches and fatigue of ET.

Here's to getting those platelets under control!

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