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Essential Thrombocythemia: Making treatment decisions
Blood Cancers & Disorders | Last Active: 9 hours ago | Replies (403)Comment receiving replies
@appraiser1946
I have been on Anagrelide for over 5 years now after being on HU for 18 years and developed a very bad case of skin cancer.
I have no problems with it at all. It is best used by those who have no heart issues. I experienced some palpitations in the beginning
But those subsided after my body adjusted. My hair is now thicker and my energy level is just fine. I have less side affects with this drug than HU. I also take a baby aspirin daily. Hope that helps you 😊
Replies to "@appraiser1946 I have been on Anagrelide for over 5 years now after being on HU for..."
@nancyra Thanks for the information about anagrelide. The doctor has taken me off of hydroxyurea because of the red blood count and it causing anemia. Always a little afraid of a new medication. I have had some heart palpitations already. I am hoping and praying the stops. Thanks again for your positive comments.
@nancyra This is good to know. Hopefully I’ll have a similar experience. Thanks.
@nancyra
There are heart issues on both sides of my family and l told my doctor no way no how. The HU is effecting my red and white blood cells, hemoglobin etc. I’m going to a specialist that deals with blood issues. If he says the same thing then l am heading to MD Anderson.
There has to be a way to receive a lower dosage then 500mg. I take 3 times a week and if l take more then everything goes down. My platelets are at 714 now. I don’t want to take a drug that causes me to take another drug. 😔 The Anagrelide is a big no. My ticker is not to be played with at all.
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@nancyra Hi, I am currently on HU, hoping when I see my new haematologist tomorrow, they put me back on Anagrelide. Was on Anagrelide for over 16 years with no problems. On HU for 1 year, my hair has thinned out badly and i am just so tired all of the time. While on Anagrelide I did not have any side affects. Fingers crossed.