Since PV diagnosis, I've done blood tests once a week for three weeks now, so three tests total.
The highest my results have ever been before HU meds was
HGB 16.7; HCT 50.5; PLT 418.
First test was only on Aspirin.
Second and Third tests were with both Aspirin and HU.
The HU dosage is 500 mg @ 4x week.
The first week my counts went down. HGB 16.7; HCT 50.3; PLT 381
Second week down more. HGB 15.6; HCT 47.9; PLT 356
Third week up a smidge. HGB 16; HCT 49.1; PLT 379
Do they go up and down before settling at some number range?
I'm having more blood tests every week for next five weeks before next doctors appointment.
Hello, they may increase the hydroxyurea to get the HCT down but normally you will require a Phlebotomy to control that. It is normal for platelets to fluctuate even while on the meds. Depending on age and other health conditions, your doctor will have a max safe high for that. Mine is 600. I’m 59 with no other Heath issues but diverticulitis. Baby aspirin, Hydroxyurea 5X a week and Phelbotomies about every 8-10 weeks.
Is it normal to see the HCT, HGB, and PLT all fluctuate when you are doing weekly tests for 8 weeks? I’m trying to determine if you see one move up a point or two does that mean it’s going to continue going up. Or might you see it go back down the following week without any change in meds.
Since PV diagnosis, I've done blood tests once a week for three weeks now, so three tests total.
The highest my results have ever been before HU meds was
HGB 16.7; HCT 50.5; PLT 418.
First test was only on Aspirin.
Second and Third tests were with both Aspirin and HU.
The HU dosage is 500 mg @ 4x week.
The first week my counts went down. HGB 16.7; HCT 50.3; PLT 381
Second week down more. HGB 15.6; HCT 47.9; PLT 356
Third week up a smidge. HGB 16; HCT 49.1; PLT 379
Do they go up and down before settling at some number range?
I'm having more blood tests every week for next five weeks before next doctors appointment.
@lindakay55 My diagnosis was 4 years ago. Started out with testing every two weeks and getting phlebotomies following most of the tests. Then started on hydroxyurea at different doses until my numbers stabilized.
Now getting monthly blood tests and taking 500mg 4x/week. Have not needed a phlebotomy for two years. Numbers are pretty stable but do vary some, like yours do from test to test. I find that being well hydrated when you take the test keeps the numbers in line.
Connect
Connect
Like
Helpful
Hug
@bharty615
Is the blood thinner aspirin? Or HU?
What is the name of the blood thinner?
@bharty615 Do you have PV?
Since PV diagnosis, I've done blood tests once a week for three weeks now, so three tests total.
The highest my results have ever been before HU meds was
HGB 16.7; HCT 50.5; PLT 418.
First test was only on Aspirin.
Second and Third tests were with both Aspirin and HU.
The HU dosage is 500 mg @ 4x week.
The first week my counts went down. HGB 16.7; HCT 50.3; PLT 381
Second week down more. HGB 15.6; HCT 47.9; PLT 356
Third week up a smidge. HGB 16; HCT 49.1; PLT 379
Do they go up and down before settling at some number range?
I'm having more blood tests every week for next five weeks before next doctors appointment.
Hello, they may increase the hydroxyurea to get the HCT down but normally you will require a Phlebotomy to control that. It is normal for platelets to fluctuate even while on the meds. Depending on age and other health conditions, your doctor will have a max safe high for that. Mine is 600. I’m 59 with no other Heath issues but diverticulitis. Baby aspirin, Hydroxyurea 5X a week and Phelbotomies about every 8-10 weeks.
Thanks.
Is it normal to see the HCT, HGB, and PLT all fluctuate when you are doing weekly tests for 8 weeks? I’m trying to determine if you see one move up a point or two does that mean it’s going to continue going up. Or might you see it go back down the following week without any change in meds.
@lindakay55 My diagnosis was 4 years ago. Started out with testing every two weeks and getting phlebotomies following most of the tests. Then started on hydroxyurea at different doses until my numbers stabilized.
Now getting monthly blood tests and taking 500mg 4x/week. Have not needed a phlebotomy for two years. Numbers are pretty stable but do vary some, like yours do from test to test. I find that being well hydrated when you take the test keeps the numbers in line.
-
Like -
Helpful -
Hug
1 Reaction