Hello @jiminkansas, and welcome to the PD support group on Mayo Connect.

Medication and exercise are both critical in treating PD. Have you been referred for physical therapy? If not, this would be helpful, and I highly recommend that you ask for a PT referral. Here is some information about the importance of exercise for PD from the Brain & Life periodical:
https://www.brainandlife.org/articles/staying-active-slow-cognitive-decline-parkinsons-disease
You mention that you feel your condition is worsening. Can you describe the symptoms that are most bothersome right now?

@jiminkansas My husband sees his doctor every 6 months and can converse by email or phone if he feels he needs an adjustment in his medication. Once a year doesn’t seem like enough. Best of luck.

@jiminkansas I can understand why it's taking so long for the VA to respond - they simply don't have enough people and nonetheless they have recently had funding diminishsed and several VA workers have been RIF'd. I shan't indulge myselfI (wife of a Veteran) in a rant about that because that won't help you in the teeniest bit. One thing that might get you better results is to contact your Congressman and your Senators about this. If nothing else, if he/she doesn't respond as you would wish, at least you'll lnow not to vote for him the next time he runs. Your elected representatives have lots of green weenieson their staff who are just tickkled speechless to work 100 hours a week for embarassingly low wages for Congressman Bilbo or Sentator Dumbledore. and it is their plight in life to make their boss look like Mother Theresa or Superman to the rest of the world. handling a constituent's problem (most especially those of a Veterean) helps them achieve that goal. .It might even get him some free air-time , too. So go to Congress.gov and type in your address. The name and contact info on your representatives should be revealed unto you as if by magic. Don't be worried if some young person who sounds like they're still in high school calls you to see what you need. It's not an insult. Senators and Reps have their hands quite full at the moment. And, even if they didn't, some pimple-faced 19-year-old probably knows a lot more about the ins and outs of getting problems addressed because they've been hired specifically to do this work and many of them are just as bright as a brand new penny (except that we're not going to have any more brand new pennies,arew we?) and smart as a whip. Someday THEY may becone an elected representative. The really clever ones develop relationships with the people tasked to respond to these kinds of requests -- learning skills (and developing an impressive Rolodex/ contact list) to become a Senator of Representative themselves). I don't know what your elected State Reps and Senators would be able to to to help you, although the Governor may be looking for ways to help them climb that ladder. You can help with that if he sucessfully solves your problem with VA - every body benefits in the back-sctatching game here and your taxes are paying the salaries of the people you are asking to help you. Leverage them to work for you.