Connect
← Return to Polycythemia Vera: Just been diagnosed
Discussion
Polycythemia Vera: Just been diagnosed
Blood Cancers & Disorders | Last Active: 1 day ago | Replies (467)Comment receiving replies
Since PV diagnosis, I've done blood tests once a week for three weeks now, so three tests total.
The highest my results have ever been before HU meds was
HGB 16.7; HCT 50.5; PLT 418.
First test was only on Aspirin.
Second and Third tests were with both Aspirin and HU.
The HU dosage is 500 mg @ 4x week.
The first week my counts went down. HGB 16.7; HCT 50.3; PLT 381
Second week down more. HGB 15.6; HCT 47.9; PLT 356
Third week up a smidge. HGB 16; HCT 49.1; PLT 379
Do they go up and down before settling at some number range?
I'm having more blood tests every week for next five weeks before next doctors appointment.
Replies to "Since PV diagnosis, I've done blood tests once a week for three weeks now, so three..."
Connect
@lindakay55 My diagnosis was 4 years ago. Started out with testing every two weeks and getting phlebotomies following most of the tests. Then started on hydroxyurea at different doses until my numbers stabilized.
Now getting monthly blood tests and taking 500mg 4x/week. Have not needed a phlebotomy for two years. Numbers are pretty stable but do vary some, like yours do from test to test. I find that being well hydrated when you take the test keeps the numbers in line.