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This and That and Talk - My Transplant

Transplants | Last Active: Aug 14 9:57pm | Replies (1677)

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@mickj

@contentandwell That's a good question. Prior to transplant, I was on a fluid restriction to some extent. So after transplant, I asked my team if those rules still applied. They said absolutely no. Based on that, and the fact that all doctors will tell you to drink a minimum of 2 liters per day, I thought more would be better. And I've not read anything to tell me differently. So I thought why not double that number. My nephrologist was on board with it as well.

I do the same thing with exercise. It's recommended to exercise 150 minutes/week, so I figured I would double that as well. And everything I've read, provided I'm healthy enough to do it, it will do nothing but help me. I take the same approach with nutrition.

I don't have an easy time with this. But at the end of the day, I've gone through too much, put my family through too much, to not give my body the best chance I can do be healthy, controlling the things I can control. There's no doubt that at some point in the future, I'll get sick or have rejection, but it won't have anything to do with how I treat my body.

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Replies to "@contentandwell That's a good question. Prior to transplant, I was on a fluid restriction to some..."

I was told to drink three liters a day and that other clear decaffinated liquids, without sugar count too. After transplant my kids were pushing me to drink more water and I gained 18 lbs in water weight. Then the nephrologist told me to only drink when I was thirsty. I was given a diuretic, and my weight and swelling went down. Now I’m on three liters a day plus tea.

@mickj it sounds like you are doing all the right things. I too am going well beyond exercise recommendations, but I must admit I have some trouble getting all of that water into myself. I do it though. The last thing I want is to have kidney problems now, after all I have gone through.
Nutrition is my downfall. I am pretty much on track right now, and I do eat very healthily, but I often eat more than I should.
JK