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This and That and Talk - My Transplant
Transplants | Last Active: Aug 14 9:57pm | Replies (1677)Comment receiving replies
Hey @contentandwell I recently had a liver transplant (5 months ago). Pre-transplant, we talked about doing liver+kidney, but we opted not to go that route. My kidneys were not horrible, but not very good either (creatinine 1.7, GFR 45). Post transplant, my transplant team never said anything about bumping up liquids. They also said nothing about limiting liquids.
My kidney function has improved post-transplant, but it's still nothing to phone home about (creatinine 1.3-1.4, GFR 55-65). Certainly Tacrolimus isn't helping. But I'm only taking .5mg 2x per day, and the tacrolimus level in my body is in the 3-5 range. So any effect that it's having on my body is not going to lessen. I figure I better do everything I can to help out my kidneys. And lots of water (4-5 liters/day) is a big part of that. At least that's the way this armchair doctor sees it.
Replies to "Hey @contentandwell I recently had a liver transplant (5 months ago). Pre-transplant, we talked about doing..."
@mickj It's good that you are getting lots of liquids in despite your transplant team not recommending it. Hopefully this will keep things from getting too bad, same thing I am hoping for myself. 4 - 5 liters is even more than I get in.
JK
I am curious. I am a transplant patient, also. 9 years ago I received a liver and a kidney. A few years back, a kidney stone was found on a scan and i was directed to drink 3 liter a day. It is not an easy task for me on many days, but I keep a pitcher of water on my kitchen counter, and work all day long to get it down. How do you manage to consume 4-5 liters of water daily? It sounds like a lot. Did your transplant team tell you to drink that much? Thanks.
Hi, mickj. I have a liver and kidney transplant. My kidneys were completely gone, and I was on dialysis, so I needed to get both organs. Since I have 2 organs, I have 2 departments who work together to monitor my numbers. Since you are concerned about your kidneys, do you see a nephrologist for your kidney care?
How is your liver transplant surgery recovery coming ? How do you feel?
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That’s good to know yes plenty of water .. well 20 years ago they had me on high doses of tacolimous 4mg twice a day so yea that did not help matters at all ! So now we are at 1 mg twice a day and it seems to be doing ok hopefully my creatine comes down some I was averaging around 2.4 but in the last year it is at 3.5 so it has taken a huge swing the wrong way ...this is why I am on the kidney transplant list ... so yes if you try and keep your kidneys flushed out it will help save them .. happy to hear your liver transplant was a success!! I’ll be 21 years out in March and liver is basically doing great !!