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This and That and Talk - My Transplant
Transplants | Last Active: Aug 14 9:57pm | Replies (1677)Comment receiving replies
@threerrr3 I have not had a second transplant but they do keep a very watchful eye on my numbers for any kidney problems, and I am supposed to drink 80 - 100 ounces of water or fluid a day to keep them flushed.
I used to participate in a different forum and I know that some people had kidney problems following a liver transplant, but I have no idea if they had been instructed to drink as much fluid as I have been. One person said that after her liver transplant they told her that she would probably need a kidney transplant down the road but my transplant center has a more optimistic outlook and is very pro-active.
It is something that I try to not think too much about though.
Have you also been told to drink a lot of fluids?
JK
Replies to "@threerrr3 I have not had a second transplant but they do keep a very watchful eye..."
Hey @contentandwell I recently had a liver transplant (5 months ago). Pre-transplant, we talked about doing liver+kidney, but we opted not to go that route. My kidneys were not horrible, but not very good either (creatinine 1.7, GFR 45). Post transplant, my transplant team never said anything about bumping up liquids. They also said nothing about limiting liquids.
My kidney function has improved post-transplant, but it's still nothing to phone home about (creatinine 1.3-1.4, GFR 55-65). Certainly Tacrolimus isn't helping. But I'm only taking .5mg 2x per day, and the tacrolimus level in my body is in the 3-5 range. So any effect that it's having on my body is not going to lessen. I figure I better do everything I can to help out my kidneys. And lots of water (4-5 liters/day) is a big part of that. At least that's the way this armchair doctor sees it.
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Well with the liver I had no clue that 20 years ago this could happen !! My Creatine level over the years though was going up a couple points every year . They tried med adjustments through out the years but that’s why I had a few set backs when they lowered it to much to compinsate for my kidneys .. so almost 21 years later here we are !! My sisters are getting tested and I will be traveling back to Mayo in a couple weeks ! My testing is done just looking for a match right now then the transplant hopefully ! Do you know the other blog name that might no more about this ? But I will definitely be on here cause this kidney this is so new to me ! Also after being a transplant recipient for 20 years you really need to take care of your skin !!! Stay out of the sun ! I have lots of topical skin cancer from all the meds also !!