Connect
← Return to Essential Thrombocythemia: Making treatment decisions
Discussion
Essential Thrombocythemia: Making treatment decisions
Blood Cancers & Disorders | Last Active: 9 hours ago | Replies (403)Comment receiving replies
@jp2000 I am getting ready to start Anagrelide today. I have been on hydroxy urea for about five years. My oncologist is changing my meds because my red blood cells are making me anemic and it is caused by the hydroxyurea. My doctor said that Anagrelide Side effects are headaches and high heart rate. I would love to know if you have experience any of this on this new med. Would love to hear from you. Thanks.
Replies to "@jp2000 I am getting ready to start Anagrelide today. I have been on hydroxy urea for..."
@appraiser1946
I have been on Anagrelide for over 5 years now after being on HU for 18 years and developed a very bad case of skin cancer.
I have no problems with it at all. It is best used by those who have no heart issues. I experienced some palpitations in the beginning
But those subsided after my body adjusted. My hair is now thicker and my energy level is just fine. I have less side affects with this drug than HU. I also take a baby aspirin daily. Hope that helps you 😊
Connect
@appraiser1946 I should be getting my meds tomorrow so I will let you know my side effects. It’s interesting. I had below normal red blood counts for years. Even my white blood count was below normal even during the pandemic. I never got so much as a cold much less Covid. My doctor was primarily worried about ulcers. I experienced fatigue while taking HU. I thought it was primarily due to the HU but my GP identified a vitamin D3 deficiency. I started taking D3 supplements and the fatigue lessened noticeably.