@colleenyoung
Hi Colleen, thank you for asking. I think my doctor's office is on vacation through January. I had a tele-meeting with her just before Christmas. She said she would like to schedule the BM biopsy, but it would be at the end of January. I also have an ultrasound of the abdomen scheduled for the end of January. She said I can continue with the HU according to the original prescription of 5 days on 2 days off, or I can take it seven days. I first thought I would take it 7 days in order to lower the platelet count faster, but then I decided to continue 5 days, because I don't really have had any bad reactions from platelets.
After starting HU I sometimes have mild nausea, headache in the morning when I wake up, but it goes away on its own. Last couple of days when I wiped my nose I have seen some spots of blood in the Kleenex. I don't know if it is caused by HU, but it has not happened before. I do use Latanoprost drops in my eyes every night to control eye pressure and also I have to take plavix every day instead of aspirin. My husband mentioned that it looks like my hair is thinning a little.
I am feeling OK otherwise.
Hipsu

@colleenyoung
I have now a date for my BMB. It is scheduled on February 9th and then my follow up with the doctor is March 9.
I had a blood test on Monday Jan. 12. There wasn't too much change yet.
Oct. 9: platelets 705, RDW 15.0
Dec. 4: platelets 776, RDW-CV 14.9 ----> started HU on Dec. 7
Dec. 18: platelets 730, RDW 15.3
Jan. 12: platelets 633, RDW-CV 16.2
My next blood draw is Jan. 26, 2026.

I posted today also in Diabetes & Endocrine System Support Group, because a CT scan Jan. 2025 revealed that I have some nodules in my thyroid. I finally got an ultrasound and biopsy in December. The biopsy result was 'Nondiagnostic'.
- Hipsu 🙂