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The Caregivers' Guilt Dumpster - Open for business

Caregivers | Last Active: 10 hours ago | Replies (300)

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Profile picture for bigbon @bigbon

@cjme You are "preaching to the choir" with your post. I also have to weigh my emotions about unrealistic expecations about attending events, traveling, etc. Well meaning family and friends offer suggestions about going somewhere warm now that it's winter. But the thought of me handling everything is out of the question. Driving, packing all the medications, bringing the oxygen compresser and tanks, finding bathrooms . . . too much. Thank you for letting me add to your "dumpster guilt".

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Replies to "@cjme You are "preaching to the choir" with your post. I also have to weigh my..."

@bigbon Thanks for adding the comment about the well meaning family and friends that give suggestions that require unrealistic energy to achieve! I have recently answered them with "if I could just snap my fingers and make it happen that would be wonderful, but the effort to make it happen would take an army of people, and the expense is beyond our means!" They do mean well, but you can't truly imagine it until you live it, right?

@bigbon I totally agree! This job called Caregiving is the most over the top position that a person deals with. It used to be just pack and go. Yes , it could have been us. Not one person gets it until your are in the middle of it! My spouse has so many meds and items he uses that it is not worth going.
It takes the fun out of traveling. Trying to keep my spouse safe from himself is just as hard. He wants to go to bed at 6pm and then gets up early in the morning. I get no sleep and all he does is complain and say I don't care. Not true. I have given him so very much myself. He starts getting stranger every evening and I have to remind myself he has sundowners/LBD. It does not matter what I do he is never happy. Let a stranger or a friend do something.
He praises and thanks them. Me, I am part of the furniture. This has been the most stress I have ever endured. Having children was easier. Yes, I may sound harsh right now...but today is my Anniversary as well. Not I love u or thank you at all. Sad and feeling defeated.