I'm sorry for what you're going through but I'm glad you have the brain power to research. Some doctors don't like to hear patients have consulted Dr. Google. It is important to verify AI. Maybe you've already read a lot of medical journal articles before consulting AI but it should also give you sources.
With your complex case, you've done the right thing by trying to get into one of the major medical institutions. Not a doctor, but sounds like you need a skilled surgeon at a minimum.
The immediate issue sounds like nutrition while you wait to see a doctor. Since you research, I assume you are working on that with all your strength.
Finding a dr who listens is a challenge because our system means they don't have much time.
That's assuming you're in the US.
Condensing your issues into some bullet points, similar to what you posted, could be helpful. Make those points about what has been diagnosed and who gave the diagnosis. Then make some points about the issues that have not been diagnosed. That's where your research comes in, or you can ask about your theories.
Some doctors are surprised and dismissive by patients who have done research. It's unfortunate. you've been labeled as combative.
You may want to tell a doctor upfront that you have been labeled that. They may see it in your records anyway.
You could say something like: "Unfortunately, I've been labeled as a combative patient. I did not intend to be combative, but I'm trying to advocate for myself in a very difficult situation. I hope you will see me as a pleasant patient who has tried their best to learn how to be healthy.." Tnat's top of my head and it needs to sound like you! That's another issue with AI. It may not sound like you.
Make sure that what you sent to different institutions actually got there. It's amazing how things can go astray.
You may want to take a look at Reddit. You may have to separate your issues for search purposes.
A counselor could be an enormous help because you're coping with so much. They might be able to help you with communication suggestions too.
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I don't know how you can do this but doctors usually want to know the main reason you're there. You've got a lot of reasons. You may have gone through that exercise when you submitted your info to those different places.
Again, I'm sorry for this and I hope you have some luck getting in somewhere you can be helped. I hope you have a good support system.