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Pancreatic Disorders Group: Introduce yourself and connect with others
Pancreatic Disorders | Last Active: Jan 5 8:55am | Replies (57)Comment receiving replies
Hello, I’ve been diagnosed with main duct IPMNs as well as others throughout my pancreas. My doctor at Mayo is suggesting total pancreas removal. I asked her if she knew if others who had had the removal who I might be able to chat with. She is checking on it. If there are others in this group, please let me know. Thank you.
Replies to "Hello, I’ve been diagnosed with main duct IPMNs as well as others throughout my pancreas. My..."
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Hello @bluemorphos and welcome to Mayo Connect. This is a great place to find support!
Here are three discussion groups that mention a total pancreactomy:
- Total Pancreatectomy
https://connect.mayoclinic.org/discussion/total-pancreatectomy/
– Help…need guidance on eating after Whipple
https://connect.mayoclinic.org/discussion/help-need-guidance-on-eating-after-whipple/
- Life after Pancreatectomy: How was your recovery? https://connect.mayoclinic.org/discussion/life-after-pancreatectomy/
I'm tagging fellow members like @beachdog @drileymn @buckslayer @luckyone4321 @chemobile @kjrita @kay2 @wrolsen @charliegolfrep @kamnorris2 who can share their experiences with pancreatectomy and recovery tips, either as a patient or a caregiver.
Has your doctor indicated when this surgery might occur?