← Return to CALR exon 9 mutation w/translocation of chromosomes 10 &13

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Small silver lining????

Since my dx of ET I've had an increase in my headaches (migraines & cervicogenic) especially in the morning however it could also be a "chicken or the egg" scenario too. About two months ago I contacted my neurology nurse and she recommended one of two things: increase my amitriptyline to 75mg or try magnesium 500mg, I do not want to increase my amitriptyline because of the weight gain (when on 75 my weight blew up to almost 200#) so zi opted for the magnesium but I started at 250mg at bedtime (wasn't sure what magnesium would do to me). However before I started I researched and noted magnesium also is supposed to decrease platelets so 🎊 BONUS so I contacted my hematology oncology nurse and she agreed with the magnesium. I started with 250mg and noted my headaches (both types) decreased slightly. After a few weeks I increased to 500mg and within a few days I noticed I started feeling so much better1 and I wasn't waking up with headaches. A few days ago I changed from just 500mg of magnesium to a 12-in-1 of magnesium (different forms of magnesium) elementals and 🤯: NO HEADACHES, I'm sleeping better and overall feeling so much better! My hematology oncology nurse has ordered more bloodwork to check my platelets but I'm waiting to be on the magnesium a bit longer and then I'll get the bloodwork done.

Having no headaches of anytime is a major bonus for me because for a long time I've lived with headaches bit for right now I am THRILLED!!! If it helps my ET then BONUS!!! I just now I am feeling so much better.

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Replies to "Small silver lining???? Since my dx of ET I've had an increase in my headaches (migraines..."

@daelitesmom I have ET with the JAK2 mutation and suffered from monthly migraines after having them stop when I hit menopause 15 years earlier. When my platelets fell to within normal range, the migraines stopped and I have not had one since. I was diagnosed in October, 2023. I agree totally that the elimination of migraines is the silver lining to treating ET.