Stopping forteo
Hi
Has anyone ever stopped using forteo after 2 months because of side effects. I cannot handle this anymore the fatigue the joint pain the nausea I just finished getting through cancer treatment I do not want to deal with this for 2 years
Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.
Connect

Hi
I was on the generic teraparatide
Sue, which one. I wonder if it is one of the excipients which may be different than Forteo. I started on Alvogen teriparatide because of the price break.
-
Like -
Helpful -
Hug
1 ReactionHi
It's Teva teraparatide
I saw my pharmacist today and he said it might take a while for my system to adjust back. I never would have done this if I knew about the joint pain
-
Like -
Helpful -
Hug
1 ReactionI’m at 6 weeks now & the overall pain is more than I can tolerate. Last month I was sweating beyond belief, it’s winter & I’m in tank tops putting my hair up 😓 Little by little the pain has become unbearable & the worst part of it all is that Optum suddenly decided to FIRE my Rheumatologist & her entire staff 🙄 I cannot locate her for the purpose of even asking her for help! I guess I’m on my own now to make a decision. This women has been there for me 30+ years before she was convinced by OPTUM to join with them…….seriously a big mistake 🤨 I’ve been seeing her since a different Rheumatologist in the 1990’s diagnosed me with Fibromyalgia. That problem has been under control for decades now!! I’m 76 years old now & have survived Colon cancer stage 3c @ 65yr, Bi-lateral knee replacement’s next, then Fractured my R femur from a fall followed by breast cancer, caught early & a lumpectomy resolved that. There were 3 other serious problems (a fungal lung abscess, thought to be lung cancer till Sloan Kettering in NYC did a biopsy, bullous pemphigoid & actually attacked by my flat tire, no thanks to AAA resulting in gangrene) I’ll jump to another fall resulting in a fractured hip which I’m just recovering from now & when I decided it might be wise to address my osteoporosis!
Anyone thinking I should contact my Primary, she retired several months ago after being her patient for 40 years……..I’m just lost 😞 Today I just couldn’t torture myself with another injection due to the fact that I’m fed up with being in pain & additionally being unable, nowadays to convince ANY DOCTOR that Pain meds may actually help me get through this!!! 😔 HELP 🤯
-
Like -
Helpful -
Hug
1 Reaction@lainiec49
Hi
Can you talk to your pharmacist and I had to also call the company that makes that drug they gave me the number and report all the side effects and they told me to stop it. It's not worth being in this much pain you do need to find a physician like a GP for sure. I am assuming you're in the states I'm in Canada. The joint pain from that drug is horrific not worth taking . I went back on my once a year injection for my osteoporosis . I have three compression fractures in my thoracic spine two are the result from radiation for breast cancer. So I do reclast once a year and it actually is working I was doing well before the radiation. Maybe you need to find an endocrinologist not a rheumatologist that's who I see he specializes in osteoporosis. I wish you well you're quite a warrior you have been through a lot.
-
Like -
Helpful -
Hug
1 Reaction@lainiec49
Have you tried using Google to locate your rheumatologist?
-
Like -
Helpful -
Hug
1 ReactionI had terrible bone pain, nausea etc. when I used Boniva.
Told my doctor and he told me to stop taking the Boniva immediately.
I am “allergic” to something in the Boniva.
You bet I stopped! If I was taking a med for a condition and it gave me horrible side effects, I would stop immediately. Pain is the body’s way of saying something is wrong.
-
Like -
Helpful -
Hug
3 Reactions@lainiec49, this is terrible.
I'm assuming the prescribing doctor the one who has suddenly been dismissed? Has Optum provided you with any replacement care.
Call Optum tell them you are having side effects, you have stopped the medication and you need prompt care.
All of these medications should have follow-up lab work with attention to the side effects you are experiencing. Happily the effects of the drug usually subside quickly.
I my lay opinion you should stop the medication. The inflammation it is creating can be damaging. I would call, and email, and use the patient portal (all three to make the medical facitlity aware that you need prompt medical attention. It is completely untenable. Sometimes an email to an administrator is more effective
There is no fault in trying to locate the previous doctor or you ex-primary, but they may be limited in the information they are allowed to provide or feel comfortable providing,
-
Like -
Helpful -
Hug
1 Reaction@sue417
Thank you 🙏🏻 I haven’t seen an endocrinologist in the past, but I will look into it. I do live in the US on the Jersey Shore!!
-
Like -
Helpful -
Hug
1 Reaction@lainiec49 I won't say this will work, but what if you wrote them and asked them for contact information? or look at the State licensing board for information. I lost my Endo. Fabulous doctor. He told me him and some others were opening a clinic in the same city. It hasn't opened yet so I haven't reconnected. Many of my long term doctors have the same regret about joining the organization you mentioned. One of my major university medical center doctors forbids me from going to that clinic you mentioned for emergencies.
-
Like -
Helpful -
Hug
2 Reactions