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This and That and Talk - My Transplant

Transplants | Last Active: Jun 7 8:31am | Replies (1672)

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@gaylea1

@jeanne5009 yes the edema definitely affects my itching and I am pre transplant. I also have all those tiny white bumps all over my feet, arms and legs. It does occur mostly at night. I have tried, benadryl and lotions and a certain medication but nothing seems to work.

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Replies to "@jeanne5009 yes the edema definitely affects my itching and I am pre transplant. I also have..."

@gaylea1 Could any of these help you remedy night itching? Change in temperature: when you first go to bed you snuggle into bending, but body temp changes thru the night, you get somewhat overheated and start itching. Any change in laundry soap or drying method: a new formula in soap, or change in machine/dryer sheet/fresh air vs dryer. Changeup in diet before bed: weather changing so you have a cuppa something warm, which makes you feel good at the onset but warms your internal temp up too much a bit later. Lotion has helped me.
Ginger

gaylea, My heart hurts for you.

I had that severe itching, too. It was so awful that I was often on the verge of tears. There was not a doorway that was safe from my constant back scratching. Imagine the image of a big ole grizzly rubbing against a tree - That was me!
Sometimes a good soaking bath with Aveeno oatmeal bath oil helped briefly, but even that brief escape from itching was not worth the trouble to me, because it was an overwhelming task. I was fatigued, and my edema made movement difficult, and I was cold all the time. I never got to where I was scratching until it bled, though, I hear that that can happen.

Somewhere along the wait, the severe itch gradually diminished. I don't know why.
We are all different in our symptoms as we await our transplants.

Hugs to you and to anybody who is also experiencing these symptoms.

@gaylea1
Misery loves company...