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This and That and Talk - My Transplant

Transplants | Last Active: Aug 14 9:57pm | Replies (1677)

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@contentandwell

@rosemarya My PCP also has a "hands off" approach to anything that involves my transplant, and my transplant team has that same philosophy when it comes to anything that is not transplant related. I think they don't want to step on the toes of the PCPs perhaps.
JK

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Replies to "@rosemarya My PCP also has a "hands off" approach to anything that involves my transplant, and..."

I think it must be a mutual respect for each other in doing their job well.

I had a frightening experience 13 months after my transplant, I don't think I have ever shared this here before, because it didn't come up anywhere.

One month after my successful 1st year checkup, I developed a terrible vomiting, diarrhea, overnight. I assumed that I ate something or had picked up something related to yard work the previous day, even though I wore gloves. As 8:00 AM approached I knew that I would not be able to take my medicines. My temperature began to rise quickly, and I began uncontrollable shaking, PCP sent me ER. I had developed sepsis. My GI was in communication with Mayo. After 2 nights locally, I was taken to the transplant center to receive next level care. The interesting thing was this: The transplant team at the Univ Louisville was also in contact with Mayo and was following their directions for my care. The Physician at Univ of Louisville, where I had been sent, told me that he would only operate on me if it was completely necessary (emergency or life/death). I think it was 5 days later, I was able to travel, my husband drove us to Rochester Mayo where they discovered that I need a surgical procedure. I found it comforting that my own transplant team took that kind of one-on-one approach, even at 750 miles away.
The physicians proved to me how well they can all work in a coordinated fashion when necessary.

@contentandwell I, for one, want my team of Dr's talking to each other! If the nephrologist I have now hadn't pointed out what the fired one and my primary ignored, my MGUS wouldn't have been found. Just, wow.