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This and That and Talk - My Transplant

Transplants | Last Active: Aug 14 9:57pm | Replies (1677)

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@sholman459

My wife received a liver in Jan. of this year. Since then she has had to have stints put in to expand her bile duct. She is itching from head to toe and it's driving her insane(me also!). She takes frequent baths daily with baking soda and takes benadreyl which don't seem to help. Do others suffer from this and if so is there any relief for this? HELP!!

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Replies to "My wife received a liver in Jan. of this year. Since then she has had to..."

@sholman459, Welcome to Connect. I am happy to meet you.

Prior to my transplant for PSC (Primary Sclerosing Cholangitis) a disease that affected to bile ducts, I suffered with severe itching for a period of time. If my memory serves me correctly, my itching was a response to bile in my system. I was not yet a patient at a transplant patient. My local GI prescribed a RX named Cholestyramine that offered some relief. Since you have mentioned that your wife has had stints inserted in her bile ducts, I wonder if this is something that is worth asking about.

Have you discussed this with her transplant doctor? Is this an ongoing problem? or Has it just recently started?

@sholman459 I know nothing about itching and bile ducts, but I just wanted to welcome you to Connect and extend congratulations for your wife's transplant, it's such a miraculous event. I hope you and she can solve the itching problem and that then she will be doing well in all areas.
JK

@sholman459, Has your wife tried Sarna Lotion? It is for itching and it is the one that worked best for me. I used to find it near the pharmacy counter, but that was at a small local pharmacy. I have seen it in the lotion section of stores like CVS, Kroger, Walmart. If you have time tonight, you might go out and buy a squeeze bottle, or maybe 2.
I hope she can get some relief.

@sholman459 I am pre-transplant and suffer from very bad itching. I've tried everything possible but nothing gives me relief. My legs, arms, feet, chest and back are raw from scrat ting at times. Really affects trying to sleep. Not something you want hear but I just have to ride it out. I hope your wife finds something that will help her.

@sholman459 I have extreme itching following a pancreas transplant. I tried all kinds of folk and medical suggestions with no relief. Finally I purchased a mesh exfoliating towel (found at Wal-Mart) and use it to scrub my entire body. Amazingly and thankfully that works for me. FYI, it is impossible to get lotion on the middle of your back where my itching was located.