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This and That and Talk - My Transplant

Transplants | Last Active: Aug 14 9:57pm | Replies (1677)

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@rosemarya

JoDee, We are all in this together, aren't we! I sure wish this site had been available to me after my transplant.

This is definitely something to bring up at the upcoming checkup. You will learn that the transplant team loves questions so that they know what might be needed to help patient stay healthy and active. I always have a list, and most are pretty easily addressed by the NP before I even see the doctor.

As a side note, my PCP does not answer questions related to my transplant matters. He likes to tell me that I will have to "talk to the transplant people about that'. He is very good at monitoring everything else, and he is the one who first suspected that I had a liver problem. He referred me to the GI so I could get the correct diagnosis and treatment. He also works me into his appointment schedule right away if I have fever, or questionable symptoms. My friends tease me that am 'special' and get a Free Pass into the doctor's office while they have to wait for an opening:-)

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Replies to "JoDee, We are all in this together, aren't we! I sure wish this site had been..."

@rosemarya As well he should work you into his schedule right away. Thankfully, even tho he won't answer your transplant concerns, he understands your system is compromised. I'll be forever grateful to my nephrologist who took the extra steps to help me.
Ginger

@rosemarya My PCP also has a "hands off" approach to anything that involves my transplant, and my transplant team has that same philosophy when it comes to anything that is not transplant related. I think they don't want to step on the toes of the PCPs perhaps.
JK