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This and That and Talk - My Transplant

Transplants | Last Active: Feb 14, 2023 | Replies (1670)

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@wendydvb

@gingerw I am on Prograf, Cellcept, Prednisone and BP meds. Still adjusting the anti-rejection meds and steroid at 5mg daily. Hope to bring them all down. I guess i just feel a little frustrated that I didn't just bounce right back after surgery. I'm not good at sitting still. I was however very ill before, so need to be patient. Will speak to dr's at follow up. Get some PT to get moving freely again. Glad your husband is doing well.

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Replies to "@gingerw I am on Prograf, Cellcept, Prednisone and BP meds. Still adjusting the anti-rejection meds and..."

Wendydvb, I can understand your frustration that you didn't just bounce right up after your surgery. Try to remember that we are each unique in how our bodies respond to meds and healing. Don't let the pace of your recovery get you down. You are doing great:-)
Hugs

@wendydvb I also did not "bounce right back" after surgery and was quite ill before my transplant. I had a pancreas transplant and one of the workers at the hospital to me that if someone was skipping down the sidewalk with a smile on their face happily announcing that they had a panc transplant . . . they were lying. She said that pancreas transplants are hard; harder than liver or kidney transplants. My first year was very tough. I was re-hospitalized 9 times and discovered many underlying conditions that had been previously untreated. The second year was still difficult with multiple hospitalizations and continuing adjustments to manage my multiple conditions. It has taken over 7 years, continuing medical care, a back surgery and months of physical therapy for me to be as good as I am now; which I rate as fair. Last spring I was only able to walk 300 steps at a time, now I am now able to walk several blocks. My balance is not perfect but significantly better and although my stamina is still poor I have been able to take several solo trips of significant distance (3 to 8 hours) in the last month. I restarted driving about 3 years ago, making trips to the grocery and local clinic only on "good" days. I am on the same meds as you, except for I have no BP med. I don't know how far out from your surgery you are, but I share my experience to show that recovery is possible - - - and a great deal of work! Carry on and blessings to you.