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This and That and Talk - My Transplant

Transplants | Last Active: May 14 6:22am | Replies (1670)

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@contentandwell

@autoimmunecirr I had my liver transplant in September 2016. It went great. Sure, some pain and discomfort in the first few days but I was doing very well quickly after that. When I went for my first post-transplant visit they were amazed at how well I looked, and I felt great too.
There is a profile of my experiences somewhere within this forum but frankly I am not sure how to get to it, maybe of the mentors could help with this. It goes into some detail about my pre-transplant and post-transplant experiences. If you have any specific questions though please feel free to ask.
For your MELD to be 27 so quickly is surprising. Do you know what caused this? My cirrhosis was caused by fatty liver (NASH). I am in the New England area, had my transplant at MGH in Boston. At that time the typical transplant was taking place in the low 30s but I was able to get a liver when my MELD was 28. From what I have read that is the typical MELD now for transplant in this region.
As a post-transplant patient the biggest problems are that the immunosuppressants cause me some lower digestive problems, and of course I have to be very careful of circumstances that could cause infections. In December of 2017, I caught Legionnaire's Disease, presumably at a function. I am sure that was because of my lower immunity since no one else was infected. As a result I am much more conscious of my vulnerability, and I try to be aware when we travel of where other transplant centers are, just in case. Hospitals that do transplants are more aware of the limitations of a post-transplant patient.
Overall though, I have to say "life is good". I feel great, and do everything.
JK

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